Well, I confess I was feeling pretty full of myself. Learned so much from the wise ones on this forum and used DSNS from the start in early 2017. Religiously followed an anti inflammatory diet (I also have Parkinson’s Disease so was feeling super-cautious). A week ago, I sailed smoothly from .5 mg and stared 0 in the face pain-free and then... I awoke with that dreaded old ache in both hips. Could barely move. .5 mg didn’t help much. I toughed it out for a couple of days and then took 3 mgs pred this morning. Pain not gone but almost. Is this a flare? Should I go higher? Or should I try to hold steady at 3 mg? I’m so grateful for this amazing group! I
Not so cocky anymore : Well, I confess I was... - PMRGCAuk
It is a flare, probably because you have overshot the dose you need. I would try a couple more days at 3mg - providing the aches get better not worse. A lot of people getting to this stage mark time between DSNS tapers to be sure the new dose is still enough. It can take quite a while for it to show up when you have got to this level and the margins of error are VERY small.
But it does look good for a low low maintenance dose!
Bummer. "Fool me once, shame on you; fool me twice, shame on me." ...however, I've been fooled many times in the past 9 months! You get a false sense of security and you do get a bit cocky! It's normal. I hope you feel better soon!
Yes, I faithfully did the 26-day DSNS plan dropping 5mg from 20mg-15mg daily, then 1mg from 15mg-7mg, then .5mg from 7mg-0. All really was going perfectly until I was two days from my last .5mg day and woke up with achy hips. I tried a couple of days at 3mg but the morning pain didn't quite go away. I'm now back at 5mg and fine. I'll probably stay here another week and then start dropping again using the same 26-day plan that was working so well. Finally coming to terms with what PMRpro has said all along - The disease will decide when it's done. Bummer.