I've been on Pred since having mild PMR leading to not at all mild GCA in 2015. I've had no flares, but got stuck at 6.5mg for about 18 months due to a lot of stress in my life and also minor headaches when trying to reduce. Rheumy agreed I shouldn't try to reduce further at that time.
I last saw him last February when he suggested I could aim to reduce to 4mg by October, though I'll be seeing him again mid-September. I decided to follow my own double-slow version of DSNS by reducing .25mg at a time, approx. 2 weeks on each level with 1 week alternating doses, so a 3 week cycle (even longer for the first .5mg). That has been working well, and has got a lot easier once I was below about 5.75mg. I suppose my body's own steroids may have started up? I'm now between 5mg and 4.75mg. I'm using enteric coated for the whole mgs and uncoated 1mg to break into bits for the .25 and .5 parts.
It's easy to think I can just carry on like this with no problems, but the preportional reduction is getting larger and I will soon be at a level where even .25mg is more than a 10% reduction. Also so many people report having problems at this level. I'd appreciate advice on how to go from here.