does anyone know someone suffering from pcd. - PMRGCAuk

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does anyone know someone suffering from pcd.

6 years ago•3 Replies

does anyone know someone suffering from pcd.

Written by

leasowes

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3 Replies

•

PMRproAmbassador6 years ago

Do you mean primary ciliary dyskinesia?

leasowes in reply to PMRpro6 years ago

Hi,yes I do, my granddaughter has just been diognosed with it and I wondered if anyone had personel experiance of it,

SheffieldJane6 years ago

Not personally but HealthUnlocked has a PCD Family Support Group where you ought to find some experienced help. Good luck! Google it.

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