I was diagnosed with PMR a year ago after 3 months of pain & no diagnosis
I started on 15mg then the usual taper, going down 1mg a month. I started to feel awful when I reduced to 4mg. I stayed on 4mg for 4 months & then felt ok to go down to 3mg. I felt ok for 1 month on 3mg, so then went down to 2mg - only managed 4 days, then had to go back up to 3mg & then 4mg.
I went to see the rheumatologist on 29th December & guess what - I felt fine that day! Plus my ESR level was 18. I mentioned quite a few things like the extreme tiredness, the return of hot flushes & feeling down, but all he seemed to be concerned with was that I reduced my prednisone - I think he wanted to sign me off asap!
I had printed off the slow reduction chart that PMRpro suggested & he was agreeable to that, so I am following that reduction & am now on 1day 4mg - 3 days 3mg
My upper body is not too bad, but my hips & back of thighs are not good & I have that overwhelming tiredness.
I went to my doctor, but she was a bit dismissive too!
I have an appointment with the rheumatologist in April.
I am not exercising as much as I used to - mind & body not willing. Before PMR, I used to walk 2-3 times a week & yoga
I am going to phone the Rheumatology dept on Monday for advice, but just wondered what the lovely people on here thought?!
Sorry this is very long & boring! 🙄