Diagnosed in November. On prednisone and Actemra. Lots of questions
GCA and Actemra : Diagnosed in November. On... - PMRGCAuk
After 2 months of fever, night sweats and 20 lb weight loss I was diagnosed with GCA.started on 60mg prednisone daily then added Actemra in December. I have tapered to 30 mg daily and continue the Actemra. CRP has returned almost to normal. Just hoping to return to feeling normal again. Still not able to sleep much. I am walking between 4 and 5 miles a day to keep up exercise and control blood sugar as I’m also diabetic. Added insulin last week but hope getting the prednisone dosage lower might help.
I found the sleeplessness quite bad at high doses and resorted to take an OTC sleeping tablet (Nytol) every 4th or 5th night, enough to get a good night’s sleep, but not enough to get addicted - on GP’s advice. Returned to normal sleep patterns as Pred dose lowered.
Blood sugars should also reduce as Pred reduces, but as PMRpro says look at your diet.