It's been 77 days since my official, semi-conclusive PMR/GCA diagnosis. That's 77 days after waiting 19 days for the headache to go away (Yeah, yeah, stupid, I know!)
In that 77 days there have been 7 GP appointments, 2 Rheumy appointments, 2 trips to A&E, 1 DEXA Scan, 1 Abdo/Pelvic Ultrasound and 3 blood tests! And get this... I have ingested a whopping 3,870 mg of Prednisolone and cried myself more than a few rivers.
However, today, in approximately 7 hours and 30 minutes, I will see Dr Rod Hughes.
I'm not exactly sure what I'm expecting from this appointment... A Miracle Cure? A new diagnoses? The "It's just a virus" standard response?
No, I don't think so... I believe I'm hoping for an informed, educated, experienced, reasonable, second opinion.
I'm looking for a somewhat "tried and true" taper down schedule, that's based on factual historical data, with proven positive outcomes; and I'm looking for someone who will LISTEN TO ME!
This site has been a Godsend! It's Administrators and Members a wealth of invaluable information and advice. I have every reason to believe that this doctor, recommended by so many on this site, will deliver on these expectations!
I'm not expecting miracles... I've done my homework, I know these diseases suck and there's no getting around them. However, it would be nice to be listened to. Heard. Shown maybe the slightest bit of empathy and understanding.
I'll be happy if he educates me, gives me a viable plan and sends me off into the sunset with a bit more optimism and hope.
We shall see.
We shall see.