Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2017

Flare Up?

I am on 6mg Pred. Trying to keep it down for my op late September to improve healing and reduce infection. I feel the need to increase the Pred as the symptoms...

I am on 6mg Pred. Trying to keep it down for my op late September to improve hea...

Estellemac

•7 years ago

14 Replies

SI joint pain

Can't believe I've become such a moaning Minnie but I guess that's what pmr can do to us. It seems to constantly surprise me with new pain. For the last few...

Can't believe I've become such a moaning Minnie but I guess that's what pmr can ...

Jontie

•7 years ago

4 Replies

Today's update

Well folks 15mg preds today and no pain 😄 BUT tonight being diabetic I have had , 3/4 bag prawn crackers, tube rolos, spring roll, hot cross bun, bowl...

Well folks 15mg preds today and no pain 😄 BUT tonight being diabetic I have had...

Margaret1951

•7 years ago

71 Replies

Want to take advantage of all our features? Just log in!

Clinical Neurophysiology

Hello folks,wee while since I posted. I have been referred for a Clinical Neurophysiology examination,anyone had this check-up. Was diagnosed with pmr+ 6yrs...

Hello folks,wee while since I posted. I have been referred for a Clinical Neuro...

paisleyman74

•7 years ago

5 Replies

Got down to 3.5mgs Prednisolone after 3.5years

Dear All I had my first flare on 28/07/17. I thought I'd done very well having missed flares up to now having coped with stresses during the last 3.5 years,...

Dear All I had my first flare on 28/07/17. I thought I'd done very well having m...

GCA1947

•7 years ago

12 Replies

I've had enough

Sorry, but I have yet another question/problem. I had my wisdom tooth removed last week and it was wonderful to be rid of the horrendous pain. Then on Friday...

Sorry, but I have yet another question/problem. I had my wisdom tooth removed la...

Janann25

•7 years ago

26 Replies

Mouth Ulcer relief

There was a post recently about mouth ulcers. Well I have developed 3 really painful ones on the side of my tongue, none of the over the counter remedies have...

There was a post recently about mouth ulcers. Well I have developed 3 really pai...

SheffieldJane

•7 years ago

17 Replies

Sleep!!

I'm back again. Sleep, or lack of it is, wearing me down. Am currently on 20mg for another 9 days and then down to 15. My problem is when to take so I can...

I'm back again. Sleep, or lack of it is, wearing me down. Am currently on 20mg...

barbthy

•7 years ago

11 Replies

Anyone know a good Rheumy in/near Oxfordshire

Hi, does anyone know a good Rheumy in Oxfordshire. I live south Oxfordshire. I am interested in finding a good private consultant and a good NHS consultant...

Hi, does anyone know a good Rheumy in Oxfordshire. I live south Oxfordshire. I...

mmer8625

•7 years ago

25 Replies

been down to 10 mg pred since june8,rheumy wants me stay for another 3 mos

down to 10 from 40 last oct, reduced on june 8, since then overwhelmed with son,s diagnosis multiple myeloma june 20, other son how a lot of mental illness...

down to 10 from 40 last oct, reduced on june 8, since then overwhelmed with son,...

arvine

•7 years ago

7 Replies

Dorset lady and help page

I saw your post but cannot post back to it because of my brain fog and just being too ill from high dose Prednisone. In any event until I can I m same person...

I saw your post but cannot post back to it because of my brain fog and just bein...

Leeleep

•7 years ago

1 Reply

Technical issues on forum.

I had an account and my name is Aleish on account and I got locked out. So now I'm this new person until I can figure out how to fix this .

I had an account and my name is Aleish on account and I got locked out. So now ...

Leeleep

•7 years ago

4 Replies

Tocilizumab and Actermra input urgently requested to support Vasculitis.org

Hello all, John Mills at vascuulitis.org.uk is looking for feedback from patients who are diagnosed with GCA and have been or are being treated with...

Hello all, John Mills at vascuulitis.org.uk is looking for feedback from patient...

Tj2017

•7 years ago

Be the first to reply

Update on low carb diet

Just thought I would put on an update on the low carb eating regime I started nearly 7 months ago. Yay I've bit my goal weight this week😃. I started this year...

Just thought I would put on an update on the low carb eating regime I started ne...

Griggser

•7 years ago

56 Replies

Jaw pain

Anyone have any info..I have right sided jaw pain on moving my jaw..nothing at rest and I can not open my mouth wide..? I am having to cut my food small to get...

Anyone have any info..I have right sided jaw pain on moving my jaw..nothing at r...

lyndamcw

•7 years ago

27 Replies

Hi I am new here. Balance problems. Does anyone have problems with their balance?

I have had PMR/Gca for a year now. Starting at 30mg and then 60mg due to the gca. I am currently having a flare up and after reducing to 12 /1/2 mg. I am now...

I have had PMR/Gca for a year now. Starting at 30mg and then 60mg due to the gc...

Sorop

•7 years ago

21 Replies

Any one on Methotrexate?

Hi. I was diagnosed in April this year with PMR and prescribed 15mg Pred. which had very little effect. I went up to 20 and symptoms practically disappeared...

Hi. I was diagnosed in April this year with PMR and prescribed 15mg Pred. which...

GerriMc

•7 years ago

11 Replies

Actemra injections. USA

I'm going to start these injections for PMR/GCA. I have been on prednisone for six years; have had to have IV prednisone last year for GCA symptoms; down to...

I'm going to start these injections for PMR/GCA. I have been on prednisone for s...

EmmaLaura

•7 years ago

27 Replies

Help again please

Well folks been on 12.5mg for week tomorrow, ( xtra 5mg) hmmm had 2 good days and that's it 😤 Got both today PMR and GCA and starting to feel deflated once...

Well folks been on 12.5mg for week tomorrow, ( xtra 5mg) hmmm had 2 good days an...

Margaret1951

•7 years ago

21 Replies

Now my wife might have PMR!

Dear All First, many thanks for such a great source of advice and community. Second, I was diagnosed just under 2 years ago. Started at 15mg now down to...

Dear All First, many thanks for such a great source of advice and community. S...

Klammer

•7 years ago

5 Replies

Need help with pharmacology, please.

Can someone help me figure out when I should be taking these meds during the day, i.e., breakfast, lunch, dinner? I'm afraid I may be mixing meds that...

Can someone help me figure out when I should be taking these meds during the day...

Insight329

•7 years ago

30 Replies

Thyroid headache

I have allways taken my thyroxin in bed about a hour before getting up for the last 7 days getting headache within 5 mins of taking any ideas down to 4mg...

I have allways taken my thyroxin in bed about a hour before getting up for the l...

olive2709

•7 years ago

10 Replies

Are you/have you been on Actemra for GCA? Feedback required

There is a request on the VasculitisUK forum looking for patient experiences:...

PMRpro

Ambassador•7 years ago

Be the first to reply

I think I have PMR now to go with GCA

I have had GCA for 6 years and have yo-yoed on prednisone for as long. Whenever I get down to 5 mg my headaches come back and up I go to 15 mg and start the...

I have had GCA for 6 years and have yo-yoed on prednisone for as long. Whenever...

Sally001

•7 years ago

5 Replies

Ups and downs and accidents

Hi everyone wanted to update on progress! I am down to 7mgs! Not feeling quite so good but was prepared for this as a result of all the advice you have given....

Hi everyone wanted to update on progress! I am down to 7mgs! Not feeling quite s...

JulieR2

•7 years ago

7 Replies

PMRpro

Happy belated birthday wishes. Think I have sent this message already to the wrong person! Oh dear these foggy heads!

Happy belated birthday wishes. Think I have sent this message already to the wro...

joat

•7 years ago

14 Replies

Its been a while

sis that ast posted the rheumy informed that pmr has gone inactive, but I have a mild case of fibro myalgia, which I can deal with. So the pred is decreasing,...

sis that ast posted the rheumy informed that pmr has gone inactive, but I have a...

OrwellMan7

•7 years ago

8 Replies

Therapy for Depression Readily Available on NHS through Self Referral

Hi All, In answering another post I realised that not everyone will know that there is support in UK, on the NHS, for depression and anxiety. This can be...

Hi All, In answering another post I realised that not everyone will know that t...

Marilyn1959

•7 years ago

1 Reply

St John's Wort.

Hi, I get infrequent optical migraines, probably 1 or 2 a year. Just had a period of stress and took some S J W over a couple of days. Noticed when I took them...

Hi, I get infrequent optical migraines, probably 1 or 2 a year. Just had a perio...

KCRoyals

•7 years ago

4 Replies

Left leg numb

My left leg is numb down to toes and tingling with a burning sensation. Doctors booked up till end of August and I don't think it classified urgent. Ihave been...

My left leg is numb down to toes and tingling with a burning sensation. Doctors ...

Xanthe12345

•7 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2017

Flare Up?

SI joint pain

Today's update

Clinical Neurophysiology

Got down to 3.5mgs Prednisolone after 3.5years

I've had enough

Mouth Ulcer relief

Sleep!!

Anyone know a good Rheumy in/near Oxfordshire

been down to 10 mg pred since june8,rheumy wants me stay for another 3 mos

Dorset lady and help page

Technical issues on forum.

Tocilizumab and Actermra input urgently requested to support Vasculitis.org

Update on low carb diet

Jaw pain

Hi I am new here. Balance problems. Does anyone have problems with their balance?

Any one on Methotrexate?

Actemra injections. USA

Help again please

Now my wife might have PMR!

Need help with pharmacology, please.

Thyroid headache

Are you/have you been on Actemra for GCA? Feedback required

I think I have PMR now to go with GCA

Ups and downs and accidents

PMRpro

Its been a while

Therapy for Depression Readily Available on NHS through Self Referral

St John's Wort.

Left leg numb

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive