There is a request on the VasculitisUK forum looking for patient experiences:
healthunlocked.com/vasculit...
Suzy and John would be delighted if you would have a look and contribute. I have told her that many of you are in the US - she didn't say anything about that making a difference.
After going off prednisone for GCA, how long do you continue with actemra?
Has Actemra been helpful for PMR?
Eye Consultant + Rhuemy feedback. GCA. 
Having vaccine on a Actemra day?
Cold tingling feet with Prednisone and Actemra? (GCA)
