Suzy on the VasculitsUK forum has just posted this:
To support a proposed research study into access to timely and coordinated specialist care for vasculitis patients, we urgently need very brief accounts of people's negative experiences of delayed recognition and diagnosis or uncoordinated or inappropriate care.
Maximum 100 words by mid-night Tuesday 29th August!! So no pressure!!
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Those of you who have GCA that was not recognised quickly please respond - especially those who have lost vision because of the delay.
They can have all the fast-track options they like - you have to get past the GP first and sometimes even the rheumy! So any research that highlights this is going to benefit us.