Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2017

Hair Loss

Hi All, Hoping you all can shed some light...since April I've noticed significant hair loss. I am horrified! I've always had thin hair and now am afraid...

Hi All, Hoping you all can shed some light...since April I've noticed significan...

Bonnig

•7 years ago

30 Replies

New to group

Hi folks, please bear with me, as I am not good with computers or technology, however I am hoping that I have managed to join your group. I was diagnosed with...

Hi folks, please bear with me, as I am not good with computers or technology, ho...

Georgie1958

•7 years ago

4 Replies

Alendronic acid question

Hi again, now after a very interesting and good (double) session with my GP (who is really getting on board with my case I am happy to say). I am given a...

Hi again, now after a very interesting and good (double) session with my GP (who...

Lucky88

•7 years ago

44 Replies

Want to take advantage of all our features? Just log in!

Another update

I wrote at the beginning of the week about my visit to A&E, my first visit to a rheumatologist and my double vision. Well, the temporary patch fitted to my...

I wrote at the beginning of the week about my visit to A&E, my first visit to a...

Janann25

•7 years ago

45 Replies

Hydrocortisone....now on 1mg Pred..........

Well, I am in my second week of the 'new regime', which is Hydrocortisone. I have gone from 2mg Pred, to, currently, 1 mg, with total stopping of Pred, next...

Well, I am in my second week of the 'new regime', which is Hydrocortisone. I hav...

karools16

•7 years ago

4 Replies

Blood in eye

After 15 years of PMR and Pred treatment I suppose I can expect anything but this latest one was unexpected. Yesterday whilst on my way to the pool for some...

After 15 years of PMR and Pred treatment I suppose I can expect anything but thi...

podo

•7 years ago

14 Replies

Insulted or amazed! A pacing story

Hello all, My family is leaving to travel to the New Jersey shoreline from California for a family reunion tomorrow. My daughter who has three kids from 6 to...

Hello all, My family is leaving to travel to the New Jersey shoreline from Calif...

Tj2017

•7 years ago

7 Replies

Pred. and post nasal drip

Hi just wondered if the steroids aggravated this condition. I am on a low dose but mucus at back of throat especially during night is becoming a pain. Any...

Hi just wondered if the steroids aggravated this condition. I am on a low dose ...

Reethebeat

•7 years ago

20 Replies

Pain at night

I have had pmr for almost 2 years I started on 15 mg prednisolone and tapered down to zero by April of this year I was pain free for a while but over the past...

I have had pmr for almost 2 years I started on 15 mg prednisolone and tapered do...

pandamonium

•7 years ago

10 Replies

Mycophenolate

Just quick question...any body out there and on mycophenolate? Just wondered what the reasoning was for your treatment with that drug. Just pmr or ra or...

Just quick question...any body out there and on mycophenolate? Just wondered wh...

Hidden

•7 years ago

4 Replies

Pred and high cholesterol

Just wondering if anyone can shed any light on a link between high cholesterol and prednisolone. I started taking Pred March 2016 and in a year my cholesterol...

Just wondering if anyone can shed any light on a link between high cholesterol a...

Lochy

•7 years ago

26 Replies

Nothing to do with PMR! Just boasting

My 16 year old grandson has just been appointed to Technical Engineer with Her Majesty's Royal Navy! He will commence his training in January 2018, three...

My 16 year old grandson has just been appointed to Technical Engineer with Her M...

PMRandRA

•7 years ago

18 Replies

Reducing too quickly?

Hi everyone, I've not posted on here for a few weeks. You may remember that I had a PMR diagnosis at the beginning of April and started on 15mg Pred which...

Hi everyone, I've not posted on here for a few weeks. You may remember that I ...

PatB1948

•7 years ago

7 Replies

See your Dr before a month is up if on high dosage prednisolone

I haven't contributed to this site for quite some while. Mainly as I have been so ill. I wish to remind or inform new sufferers of GCA that they should...

I haven't contributed to this site for quite some while. Mainly as I have been s...

Gypdyp45

•7 years ago

8 Replies

Tarzan2

Woke up in so much pain several times last night .my arms feel heavy cant pick them up

Woke up in so much pain several times last night .my arms feel heavy cant pick t...

Tarzan2

•7 years ago

32 Replies

Temporal artery biopsy

I am going to have this done and am very concerned about the results and effects of the biopsy procedure.

I am going to have this done and am very concerned about the results and effects...

Debue

•7 years ago

40 Replies

Can an optician see if I have GCA during routine eye test ?

I have been on steroids since March when I was first diagnosed with PMR .I am currently tapering over a month down from 9 mg to 8 mg . I have noticed that my...

I have been on steroids since March when I was first diagnosed with PMR .I am cu...

Tiny_Tim

•7 years ago

12 Replies

Methotrexate anyone?

Hi All- I have been reading through different threads and appreciate everyone's input. Navigation of the blog has been getting easier for me, thankfully,...

Hi All- I have been reading through different threads and appreciate everyone's ...

JoanJo

•7 years ago

25 Replies

Dot.York

Hi I was diagnosed with pmr in February 2015 and so far pain free reducing pred ok but over did things last week and GP thinks I have sacro-iliac strain. Any...

Hi I was diagnosed with pmr in February 2015 and so far pain free reducing pred ...

CT-5012

•7 years ago

12 Replies

Rheumatologist in Essex anyone?

Hi, been a while since I have posted. Diagnosed in March 2016 (for second time, first time was 9 years ago and I didn't take steroids), started on 30mg of...

Hi, been a while since I have posted. Diagnosed in March 2016 (for second time,...

S4ndy

•7 years ago

23 Replies

The Mediterranean Diet

Hello: I'm new to this forum and I've had PMR for almost 3 years. I posted this information to a post string in which members had started a conversation about...

Hello: I'm new to this forum and I've had PMR for almost 3 years. I posted this ...

Rosedail

•7 years ago

21 Replies

Trouble reducing Pred.

I have been reducing slowly, over 4 weeks, from 9.5mg to 9mg, but the pain in my left thigh came back with a vengeance. Last night it was so bad I couldn't...

I have been reducing slowly, over 4 weeks, from 9.5mg to 9mg, but the pain in my...

Marcy47

•7 years ago

8 Replies

Aclasta Infusion

It's me again! Having been diagnosed with PMR at the end of 2014, my Rheumatologist prescribed an Aclasta infusion (bone protection) a year ago. The reaction...

It's me again! Having been diagnosed with PMR at the end of 2014, my Rheumatolo...

Lin-lou

•7 years ago

18 Replies

Honouring a work commitment - advice needed

Hi All, I am fortunate to have a flexible arrangement for my part time job, so much of the time can choose when and if I work. However this week and next week...

Hi All, I am fortunate to have a flexible arrangement for my part time job, so m...

Marilyn1959

•7 years ago

10 Replies

The Brighter Side of ('Man?!') PMR: Rheumy's Advice at 5mgpd Preds - and Light at the end of the Tunnel? ;-)

Greetings to All here - Veterans, Newbies, Men, Women, Young, Not-so-young, Confused.coms and 'Aunties' alike ;-) As I write this, I'm very aware that, for...

Greetings to All here - Veterans, Newbies, Men, Women, Young, Not-so-young, Conf...

markbenjamin57

•7 years ago

78 Replies

Latest update

I wrote a few days ago about the problems I was experiencing with ringing in one ear, dizziness and severe headache. I then started double vision and ended up...

I wrote a few days ago about the problems I was experiencing with ringing in one...

Janann25

•7 years ago

20 Replies

Is enteric coated pred more expensive? Exploding a myth:

MIMS is the book of notes about drugs that you will often see you GP checking. It gives all sorts of info about them - including the prices to the NHS. Thanks...

MIMS is the book of notes about drugs that you will often see you GP checking. I...

PMRpro

Ambassador•7 years ago

13 Replies

PMRpro -tried your suggestion but

thanks PMRpro -I have tried that- 2mg night before(late evening)+ 8 @ 6.30 am. It was no different ,tried for 2wks & then back to 9.5mg @ 6.30 am. Tired, at...

thanks PMRpro -I have tried that- 2mg night before(late evening)+ 8 @ 6.30 am. I...

Hidden

•7 years ago

1 Reply

Aching fingers

Hi, I have been a "secret viewer" of this amazing website with all it's valuable help and advice, since I was diagnosed with PMR in 2014/15. I have learnt so...

Hi, I have been a "secret viewer" of this amazing website with all it's valuabl...

Lin-lou

•7 years ago

37 Replies

Is it safe to get a permanent in my hair?

It's time for a perm and wondering if it is safe to do this while on prednisone. Every time I wash my hair it seems I loose a lot. I have short hair. Anyone...

It's time for a perm and wondering if it is safe to do this while on prednisone....

JoanElaine

•7 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2017

Hair Loss

New to group

Alendronic acid question

Another update

Hydrocortisone....now on 1mg Pred..........

Blood in eye

Insulted or amazed! A pacing story

Pred. and post nasal drip

Pain at night

Mycophenolate

Pred and high cholesterol

Nothing to do with PMR! Just boasting

Reducing too quickly?

See your Dr before a month is up if on high dosage prednisolone

Tarzan2

Temporal artery biopsy

Can an optician see if I have GCA during routine eye test ?

Methotrexate anyone?

Dot.York

Rheumatologist in Essex anyone?

The Mediterranean Diet

Trouble reducing Pred.

Aclasta Infusion

Honouring a work commitment - advice needed

The Brighter Side of ('Man?!') PMR: Rheumy's Advice at 5mgpd Preds - and Light at the end of the Tunnel? ;-)

Latest update

Is enteric coated pred more expensive? Exploding a myth:

PMRpro -tried your suggestion but

Aching fingers

Is it safe to get a permanent in my hair?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive