Hair Loss: Hi All, Hoping you all can shed some... - PMRGCAuk

PMRGCAuk

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Hair Loss

Bonnig profile image
30 Replies

Hi All,

Hoping you all can shed some light...since April I've noticed significant hair loss. I am horrified! I've always had thin hair and now am afraid I'll need a wig soon?!!

In the beginning of April I was on 17.5 mg prednisone. I am now down to 7.5 mg.

When / if does this hair loss stop?

Thank you.

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Bonnig profile image
Bonnig
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30 Replies
marylu profile image
marylu

Hi Bonnig, I'm down to 5 & have noticed my hair loss has stopped, hope yours does soon

Bonnig profile image
Bonnig in reply tomarylu

Hi Marylu,

Thanks so much for responding! I'll keep my fingers crossed I don't lose much more between 7.5 to 5 or I'll have nothing left :(

Wonder how long it takes to come back and/or if it ever will?

Good luck to you as well.

joy-bells profile image
joy-bells

I have found Chia seeds are really good for hair loss. My hair has really thickened up and I have lots of new hair growing. I sprinkle it on breakfast food and on salads anything really. I read you can have a tablespn a day. My husband is getting it and has a ggod head of hair. Hope this helps. 👍🙂

Bonnig profile image
Bonnig in reply tojoy-bells

i'll try anything!

thanks!

kezzybabes profile image
kezzybabes

Very distressing I know. Yes I noticed hair loss too around 7 mgs - hairbrush full of hairs all the time. Very upsetting. However I am now on 4.5mgs and lots of baby hair is growing around my temples snd my hair looks so much better now. I also started taking biotin tablets which my daughter swears by and think that may have helped too. It will grow back in!

Bonnig profile image
Bonnig in reply tokezzybabes

OK! I hope so!!

thank you!

Rugger profile image
Rugger

I've also noticed hair loss, but when I mentioned it to my hairdresser, she says she can see new growth at the base, so not to worry. I think hair grows about half an inch a month, so it does take time, but I hope it soon does for you.

mariacwelland profile image
mariacwelland

Hi - I'm on 5mg and my hair loss has returned to normal. On a higher dose of pred i would lose hair each day equal in size to a tennis ball. Don't despair - it will stop when your Pred goes down.

Don't bother with any of the thickening/ hair loss treatments they don't do a thing - they're expensive.

Good Luck on your journey

Maria

Bonnig profile image
Bonnig in reply tomariacwelland

many have suggested biotin...you don't agree?

piglette profile image
piglette

Hi Bonnig, are you taking Methotrexate as that seems to make hair loss even worse? The steroids had a devastating affect on my hair I looked like a scarecrow with hay for hair.

Bonnig profile image
Bonnig in reply topiglette

no..just pred

jinasc profile image
jinasc

Talk to your GP about Folic Acid. It is often used when people are having chemo etc to combat hair loss. Do not buy it over the counter until you have discussed it with your medic and the pharmacist.

PMRpro profile image
PMRproAmbassador

If it is PMR you have and April was when you were diagnosed it could be the illness itself. Being ill can have a very damaging effect on hair and it often doesn't show for a few months - which is why it doesn't occur to you when it happens.

Bonnig profile image
Bonnig in reply toPMRpro

I self diagnosed in November. Started on pred in Dec.

By April I was down to 17.5 mg... as I've reduced since April I've lost the hair

Margaret1951 profile image
Margaret1951

I never had hair loss all the time on them, but but but my facial hair is getting more !!! So have to pluck and shave lol lol don't want to get a moustache or beard !!! Anyone else got this ????

PMRpro profile image
PMRproAmbassador in reply toMargaret1951

I had a beautiful black beard in the 9 months I was on Medrol (methyl prednisolone) - than goodness for my Braun epilator!! Had had no problems with prednisolone nor now with prednisone. Got the odd one to pluck - but that comes with age anyway.

SnazzyD profile image
SnazzyD in reply toMargaret1951

Yes. Thinning on top and now a beard! I know it's in fashion at the moment but it's just not my look of choice.

PMRpro profile image
PMRproAmbassador in reply toSnazzyD

It does improve - just don't hold your breath...

Margaret1951 profile image
Margaret1951 in reply toPMRpro

😱😬

Bonnig profile image
Bonnig in reply toPMRpro

Meaning ????

It won't go back to my original ??

Or just get a little better ?

Margaret1951 profile image
Margaret1951 in reply toSnazzyD

I bought a new one but the whiskers laugh at it ! 🙀

kezzybabes profile image
kezzybabes in reply toMargaret1951

Strangely most of my body hair has gone!!! Haven't had to shave legs or underarms for months! This part of hair loss I welcome!!!! It's all very odd this PMR adventure!

Lafontainepam1 profile image
Lafontainepam1

I've had it twice in the 5 years I've had PMR. The 2nd time my Dr. And hair dresser told me to start taking Biotin. It does help, I'm still taking it everyday. Stress will cause hair loss, it was for me, and then stress effects PMR which makes you sicker yet. Once your hair stops coming out, it takes 3 months for it to start growing again, so devastating!!!! I bought hair pieces, or a wig for the time being! You will get through this💕💕💕

Bonnig profile image
Bonnig in reply toLafontainepam1

OMG......:(

bert403 profile image
bert403

Also lost lots of hair...was wearing a beautiful wig, but much rather have own hair. I took Biotin & folic acid together. I think I started to lose it at 15mg and pretty much stopped around 10mg or just below. Biotin & folic acid I feel helped. also when adrenal glands start to kick in around 7, you should see difference. I am on 1mg and my hair is very thick again. Hang n there

Bonnig profile image
Bonnig in reply tobert403

WOw.....thank you so much. I think the stress of losing my hair has been the worst!!!!!

Even more so than losing my job!

Bittebitt profile image
Bittebitt

I normally have thin and wavy hair, but, unlike you all, I feel that my hair is thicker now. And I have got curls!🤔🤔

Hindags profile image
Hindags

Just saw this thread and thought i should report that my hair is growing back!! I complained last fall that I didn't think I'd get low enough on Pred, or well enough with the PMR before needing a wig. Surprise me! It is definitely getting thicker. I no longer dread washing or blow drying my hair, and the bathroom floor doesn't look like a forest. I starting taking a hair/skin/nails supplement every other day about two months ago, but I think the hair loss had already slowed before then. The supplement might also may be helping too as my nails are much stronger and my skin isn't so easy to puncture.

So hard to know what has turned this around. I'm now on 7mg heading to 6, fingers crossed.

Bonnig profile image
Bonnig in reply toHindags

So happy for you! Unfortunately, mine has not. My hair is sooo thin.

I've been on 5mgs now since August. I haven't noticed any regrowth.

It seems to still be falling out but at a slower rate.

Hindags profile image
Hindags

That was the first positive sign for me, but I actually thought there was less on the floor because I had less on my head to lose. Lol.

I also started taking higher doses of biotin daily in a preparation called Hair Skin and Nails. I've seen several vitamin companies with similar formulations.

All three have improved. My finger nails are much much stronger. My skin isn't a prone to bleed. And my hair is a spikey mess of new and old growth that I find myself chuckling about. Real bride of Frankenstein look. But hey, it's hair.

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