Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,469 members • 38,428 posts

All posts for July 2017

Pacing story continues...

Good morning all, Thanks everyone who replied and read my post last week regarding pacing myself to get ready for vacation and watching my three grandkids go...

Good morning all, Thanks everyone who replied and read my post last week regardi...

Tj2017

•7 years ago

15 Replies

Parker Today's Positive Thought

My husband of 30yrs didn't really think that For Richer or Poorer and in Sickness and In Health would be an issue when we got married. The roles are reversed...

My husband of 30yrs didn't really think that For Richer or Poorer and in Sicknes...

Estellemac

•7 years ago

18 Replies

Hydrocortisone and DSNS

Hi - I was just wondering if there wasn't a possibility that one could transition yo hydro cortisone. I understand it's 'safer' (less side effects) cortisone...

Hi - I was just wondering if there wasn't a possibility that one could transitio...

Slosh

•7 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Not sure 🤔

Wakes me up early morning sweating profusely pain and dicum and red in face aroud eyes and stinging a little. Sometimes pains in chest. Pains in the legs....

Wakes me up early morning sweating profusely pain and dicum and red in face arou...

Rocketronzy

•7 years ago

14 Replies

Back up to 15 and no better!

Something went wrong. Not sure what i know my markers were up about a month ago but last blood work shows everything normal apart from vit d which is...

Something went wrong. Not sure what i know my markers were up about a month a...

sealine30

•7 years ago

5 Replies

last day pred...not glad nor sad..............

It's Tuesday 11 July 12.43 am. I should be asleep. Today is my last 1mg Pred. From Wed it's HC only. At first, I decided to call these awful new...

It's Tuesday 11 July 12.43 am. I should be asleep. Today is my last 1mg Pred. Fr...

karools16

•7 years ago

14 Replies

Taking Prednisone twice a day

I am on 8 milligrams of Prednisone. I was waking up very stiff in the morning so my doctor told me to take 5 in the morning and 3 in the evening. It seems to...

I am on 8 milligrams of Prednisone. I was waking up very stiff in the morning s...

England05

•7 years ago

6 Replies

Cancelled appointment = new drive!

Hi all it's me again the whinging confused one lol So after having a slight episode of the 'black dog' this morning after my long awaited follow up Rhumey...

Hi all it's me again the whinging confused one lol So after having a slight epi...

Trixiechamp

•7 years ago

27 Replies

This weeks happy thought

Just had a mammogram and it came back clear. One less thing to think about. I am trying to have two positive thoughts for each day to divert my mind from...

Just had a mammogram and it came back clear. One less thing to think about. I am...

Estellemac

•7 years ago

5 Replies

Predisalone side effects.

I suppose I am one of the lucky ones I have been on predisalone for years with not a single side effect.

I suppose I am one of the lucky ones I have been on predisalone for years with n...

Rocketronzy

•7 years ago

37 Replies

Newbie with Temporal Arteritis. New drug Tocilizumab (actrema)

Hi, I am new and have been reading a lot of good info an was so comforted when I read a post by another newbie who also has been in this battle alone. It has...

Hi, I am new and have been reading a lot of good info an was so comforted when I...

Hidden

•7 years ago

9 Replies

Medical Medium: Secrets Behind Chronic and Mystery Illness and How to Finally Heal

Anyone hear about this book? My cousin thinks I should get it. Although I keep telling her I don't have fibro and not chronic fatigue, I believe she thinks...

Anyone hear about this book? My cousin thinks I should get it. Although I keep ...

Bonnig

•7 years ago

21 Replies

Greetings from Cape Town......Cryotherapy.....does it help in final stages of PMR?

Greetings from Cape Town where life is good but we are having a bit of a drought and could borrow some of your rain. I got diagnosed with PMR in October...

Greetings from Cape Town where life is good but we are having a bit of a drought...

berold

•7 years ago

45 Replies

Pred V Methotrexate

Do people take Methotrexate instead of Prednisone? Or do you have Methotrexate instead of Naproxen and take Pred? Just a bit confused wondered who did what...

Do people take Methotrexate instead of Prednisone? Or do you have Methotrexate i...

Estellemac

•7 years ago

7 Replies

The elusive zero

Hi everyone, Have now reached my 4th anniversary of PMR.Pred worked well for me and have always reduced carefully using the DS method. However for the past 12...

Hi everyone, Have now reached my 4th anniversary of PMR.Pred worked well for me ...

Wells77

•7 years ago

4 Replies

Up the creek without a paddle...

Hello everyone, this is my first post, so be gentle with me! I am feeling confused and worried, and very scared. I have all the symptoms of PMR/GCA I have...

Hello everyone, this is my first post, so be gentle with me! I am feeling confu...

sallyboot

•7 years ago

28 Replies

Hi, I'm new here...

This site has been great for learning about PMR, and I want to thank all contributors for their time and efforts to share their experiences and wisdom. I just...

This site has been great for learning about PMR, and I want to thank all contrib...

GOOD_GRIEF

•7 years ago

19 Replies

Bloods

Still on steroids but as bloods pretty normal my doctor tells be I no longer have Vasculitis Nice thought but is this correct? Even specialist says no longer...

Still on steroids but as bloods pretty normal my doctor tells be I no longer ha...

shella

•7 years ago

15 Replies

Moon face

I am well into the Pred dosage and have the infamous "moon face". What I wonder was does this go down as Pred is Reduced or will it not go back to normal until...

I am well into the Pred dosage and have the infamous "moon face". What I wonder ...

PatB1948

•7 years ago

36 Replies

Dividing dose of prednisone

I am currently on 20 mg a day and have been taking it in the morning. Pain relief usually kicks in about 3 PM and is ok until I go to bed. Cycle starts again...

I am currently on 20 mg a day and have been taking it in the morning. Pain reli...

barbthy

•7 years ago

11 Replies

Sjogren's syndrome

Hello, l'm 32 yrs old woman. I have dignosed sjogrin syndrome in march. I have also nerves problem. Doctor Prescribed me prednisolone 5mg, hcqs200, pregablin...

Hello, l'm 32 yrs old woman. I have dignosed sjogrin syndrome in march. I have a...

Jayanti2604

•7 years ago

8 Replies

Picking your knowledgable brains....

Hi all Hope you are enjoying the weather here in Blighty, I have to say I have been trying to avoid the heat as my internal thermostat appears to be set to...

Hi all Hope you are enjoying the weather here in Blighty, I have to say I have ...

Trixiechamp

•7 years ago

29 Replies

Prednisone vs Methotrexate

I saw my Rheumatologist who told me in March he would get me off Pred. in a year. I had came down from 60 mgms to 20 mgms by 10mgms every 2 weeks. Yesterday...

I saw my Rheumatologist who told me in March he would get me off Pred. in a year...

englishrose417

•7 years ago

36 Replies

new rhumie

I have just come home from my first visit to this new rhumie. who gave me the good news that he could find no evidence for active PMR. Wonderful! but I hardly...

I have just come home from my first visit to this new rhumie. who gave me the go...

blackstone1

•7 years ago

18 Replies

Keep a "diary"

I finally took the plunge and recently began joining in with my two-pennorth(!) having referred to this excellent site from early along my almost three...

I finally took the plunge and recently began joining in with my two-pennort...

Lin-lou

•7 years ago

28 Replies

2 A M prednisone?

I saw information re dosing at 2 AM and was wondering if anyone has been doing it and how it works?

I saw information re dosing at 2 AM and was wondering if anyone has been doing i...

Aleish

•7 years ago

10 Replies

Stiff legs

Why I wonder although my rheumi has assured me in his opinion I no longer have pmr I have stiff legs I can pull leg onto chest when lying down but walking is a...

Why I wonder although my rheumi has assured me in his opinion I no longer have p...

Perkey

•7 years ago

39 Replies

Pred change from evenings to mornings?

Good morning to UK and whatever else it is in other places. I am wondering if that at some point my dose taken in the evening will be a bit low to be very...

Good morning to UK and whatever else it is in other places. I am wondering if th...

SnazzyD

•7 years ago

8 Replies

Medical Exemption Certificate

New to taking any 'regular drugs, so was just wondering if long term steroids, calcium, vit D etc would qualify for free prescriptions in UK? I know some drugs...

New to taking any 'regular drugs, so was just wondering if long term steroids, c...

Marilyn1959

•7 years ago

11 Replies

A little known wonder tea.

Hi everyone, my wife and I are expats, moved to the states in 1965, three months ago, my wife who is eighty years old, healthy, suddenly came down with...

Hi everyone, my wife and I are expats, moved to the states in 1965, three months...

Eijohn

•7 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2017

Pacing story continues...

Parker Today's Positive Thought

Hydrocortisone and DSNS

Not sure 🤔

Back up to 15 and no better!

last day pred...not glad nor sad..............

Taking Prednisone twice a day

Cancelled appointment = new drive!

This weeks happy thought

Predisalone side effects.

Newbie with Temporal Arteritis. New drug Tocilizumab (actrema)

Medical Medium: Secrets Behind Chronic and Mystery Illness and How to Finally Heal

Greetings from Cape Town......Cryotherapy.....does it help in final stages of PMR?

Pred V Methotrexate

The elusive zero

Up the creek without a paddle...

Hi, I'm new here...

Bloods

Moon face

Dividing dose of prednisone

Sjogren's syndrome

Picking your knowledgable brains....

Prednisone vs Methotrexate

new rhumie

Keep a "diary"

2 A M prednisone?

Stiff legs

Pred change from evenings to mornings?

Medical Exemption Certificate

A little known wonder tea.

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