Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2017

Please

Good afternoon, all members of this forum.I have been thinking this more often, but this time I want to share it with you. I notice that Some people with a...

Good afternoon, all members of this forum.I have been thinking this more often, ...

Zofitmogelijk

•7 years ago

92 Replies

Jaw and face pain worries

I have been taking a refucing dose of prednisolone since January following a diagnosis of PMR and have managed to taper quite slowly to 11mg daily in split...

I have been taking a refucing dose of prednisolone since January following a dia...

Zebedee44

•7 years ago

12 Replies

4 questions

Do GCA sufferers experience pain when flying? What about taking sleeping pills when taking Pred? I just collected Pred from Boots not Sainsbury's and was...

Do GCA sufferers experience pain when flying? What about taking sleeping pills ...

gesundheit

•7 years ago

6 Replies

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Million dollar question

I saw my Rheumy yesterday for the last time as he discharged me back to my GP . I am down to 1 mg pred from 20mg over a 2 year period . The last couple of...

I saw my Rheumy yesterday for the last time as he discharged me back to my GP . ...

Gaz227

•7 years ago

11 Replies

Your symptoms are a mystery

Hi dear friends, I did see my rheumatologist today and the first thing he told me was he didn't like how my treatment progresses, how the CRP count is (up...

Hi dear friends, I did see my rheumatologist today and the first thing he told m...

Akino

•7 years ago

3 Replies

Swollen legs

Hi everyone - was just wondering if anyone gets really swollen legs. I've tapered from 20 (6wks) to 17.5 (1wk) to 15 (1wk) to 12.5 (1wk) back to 15 (4x weeks)...

Hi everyone - was just wondering if anyone gets really swollen legs. I've tapere...

Slosh

•7 years ago

14 Replies

Advice on Polymialgia and Prednisone

Hi All, I am new here and looking for a little advice on reducing prednisone. I was diagnosed with Polymyalgia April this year, the haematologist put me on...

Hi All, I am new here and looking for a little advice on reducing prednisone. I ...

misschris

•7 years ago

37 Replies

Severe pain mid and upper back

I have PMR/GCA. I am currently taking 16mg of Prednisone. For the past 9 months, I have experienced sciatica which was helped by an epidural several months...

I have PMR/GCA. I am currently taking 16mg of Prednisone. For the past 9 months,...

Joyful13

•7 years ago

9 Replies

New ITP patient

After one year of low platelets my hemotologist started me on Rituxin but also gives decadron lnfusion . I now have a rollercoaster ride of insommnia for 3...

After one year of low platelets my hemotologist started me on Rituxin but also g...

Diane13

•7 years ago

2 Replies

Any links reducing PREDS and worsening Sciatic?.

Briefly preds down to 12mgafter 5 months, MRI scan shows trapped nerve base of spine, unbelievable pain, walking with crutch, should say hobbling, prescribed...

Briefly preds down to 12mgafter 5 months, MRI scan shows trapped nerve base of ...

winter10

•7 years ago

13 Replies

I'm new here

Hi, was diagnosed with GCA/PMR nearly seven years ago. I have really struggled to come right down on steroids. Some flare ups and then steroids put up high...

Hi, was diagnosed with GCA/PMR nearly seven years ago. I have really struggled t...

Mconway

•7 years ago

4 Replies

Is it still alendronic being the villain ?

After 2 operations a year apart to put pins in fractured femurs definitely a legacy of AA, I now have a vertebral fracture. The 1st was fantastic and I...

After 2 operations a year apart to put pins in fractured femurs definitely a leg...

Gillymar

•7 years ago

4 Replies

I am new to this forum

. I am a 78 years old Female and am recovering from a hip joint replacement operation in January and developed an infection straight away and had Antibiotics....

. I am a 78 years old Female and am recovering from a hip joint replacement oper...

Hidden

•7 years ago

12 Replies

I'm new here but have been following all the posts referring to PMR and joined today.

I am 83 years old and was diagnosed14 months ago and after one flare up I am down to 7ml pred. My problem is that if I sit down to read or even have coffee I...

I am 83 years old and was diagnosed14 months ago and after one flare up I am dow...

Basil5Loved

•7 years ago

18 Replies

Feel like screaming

I was diagnoised in jan and been reducing down i am currently at 10mg of pred. All results coming back normal but then why i feel like i been hit by a truck,...

I was diagnoised in jan and been reducing down i am currently at 10mg of pred. ...

160916

•7 years ago

11 Replies

Further Update

Since I last posted, I have had a bit of an eventful weekend. I have been having pain in both temples even before I had PMR diagnosis but not any other GCA...

Since I last posted, I have had a bit of an eventful weekend. I have been having...

PatB1948

•7 years ago

4 Replies

Arthritis and PMR

I have had PMR for two and a half years. I have come down fairly uneventfully from 15 to 4 mg. I have never had arthritic tendencies but in the last month or...

I have had PMR for two and a half years. I have come down fairly uneventfully fr...

MaryWR

•7 years ago

6 Replies

Wake up call!

Wow, I woke up this morning, a little extra early, to take my prednisone. I set it to the side as it was still a little early and than forgot to take it. I...

Wow, I woke up this morning, a little extra early, to take my prednisone. I set...

Tj2017

•7 years ago

7 Replies

Advice for my mum please...

Hi, my mum is 79 and not on the internet and I am trying to find out some information for her if possible... 1. She is on her third flare up of PMR - has...

Hi, my mum is 79 and not on the internet and I am trying to find out some inform...

Judyturton

•7 years ago

17 Replies

Moon face

There has been some discussion recently about moon face, how awful it is or isn't, and whether it goes away. I hated the way steroids made me look at the...

There has been some discussion recently about moon face, how awful it is or isn'...

Polywotsit

PMRGCAuk team member•7 years ago

32 Replies

Hi everyone it's been awhile, have been battling bad side effects with prednisone and methotrexate

Hi, I know I haven't been on here in quite awhile, I have been having some bad side effects the last while. Just found out last week that I have severe fatty...

Hi, I know I haven't been on here in quite awhile, I have been having some bad s...

misaryk

•7 years ago

17 Replies

GCA and Tozicilimab

Just come back from a long appointment with Professor Das Gupta in Southend. Had a temporal artery scan and a scan of my sub clavian arteries, under my armpits...

Just come back from a long appointment with Professor Das Gupta in Southend. Had...

christine2715

•7 years ago

5 Replies

Holidays?

I was diagnosed in March with PMR and am on 12.5 pred. So far so good as no pain but desperately tired and 'thick' head. I I am due to go abroad on holiday...

I was diagnosed in March with PMR and am on 12.5 pred. So far so good as no pain...

kathleen18

•7 years ago

15 Replies

Quick update

No decent internet connection, small mobile keyboard. I am doing very well under circumstances and know will need recovery time later this week. Travelling...

No decent internet connection, small mobile keyboard. I am doing very well unde...

IdasMum

•7 years ago

7 Replies

Steroid dependence

I have been on Prednisolone for 7 years, for the past 2 years 3mg daily. Would like to get down to two and a half mg daily. Any suggestions as to how to do it...

I have been on Prednisolone for 7 years, for the past 2 years 3mg daily. Would l...

Warren43

•7 years ago

15 Replies

PRED advice

HI NEED SOME advice on pred for 2week at 15, 3 weeks at 20, then upt to 25, for 4 weeks , still having days of neck pain 2 to 3 then 2to 3 ok . if i go to 30...

HI NEED SOME advice on pred for 2week at 15, 3 weeks at 20, then upt to 25, for ...

BRANTwood1949

•7 years ago

8 Replies

PMR or steroids to blame

Hi. I have not exerted myself too much apart from aqua fit twice a week. Yesterday went on an Ikea trek and although it's slightly happened before I...

Hi. I have not exerted myself too much apart from aqua fit twice a week. Yest...

Chrissy1953

•7 years ago

38 Replies

GCA

Had Bilateral temporal biopsy 5 months ago and my temples are still sore...getting headaches as well. Results were negative

Had Bilateral temporal biopsy 5 months ago and my temples are still sore...getti...

1Healthnut

•7 years ago

9 Replies

The diet that kills pain

I have recently purchased the May edition of What Doctors Don't Tell You, with this heading on the front cover. It is a comprehensive article , by Dr. Mecola...

I have recently purchased the May edition of What Doctors Don't Tell You, with t...

Mourneriver

•7 years ago

16 Replies

Temporal arteritis

I wonder how temporal arteritis makes others feel? I've had it before (about 6 years ago), but felt the same as at normal times. I am different this time as...

I wonder how temporal arteritis makes others feel? I've had it before (about 6 ...

B5252

•7 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2017

Please

Jaw and face pain worries

4 questions

Million dollar question

Your symptoms are a mystery

Swollen legs

Advice on Polymialgia and Prednisone

Severe pain mid and upper back

New ITP patient

Any links reducing PREDS and worsening Sciatic?.

I'm new here

Is it still alendronic being the villain ?

I am new to this forum

I'm new here but have been following all the posts referring to PMR and joined today.

Feel like screaming

Further Update

Arthritis and PMR

Wake up call!

Advice for my mum please...

Moon face

Hi everyone it's been awhile, have been battling bad side effects with prednisone and methotrexate

GCA and Tozicilimab

Holidays?

Quick update

Steroid dependence

PRED advice

PMR or steroids to blame

GCA

The diet that kills pain

Temporal arteritis

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