Moon face

Moon face

There has been some discussion recently about moon face, how awful it is or isn't, and whether it goes away. I hated the way steroids made me look at the time, because I hardly recognised myself. But that was as much to do with how I felt about myself on the inside as how I looked on the outside. To illustrate the effect of the filling and smoothing out, and the general 'ohyoudolookwellness', here are some photos of me before steroids, in 2004, during steroids in 2008 (yoyoing between 7 and 10mg) and three months ago. I didn't cut down on carbs, I was pretty well hooked on carbs, but I'm pretty sure that if I had, I could have avoided most of the weight gain and moon face, and more importantly, avoided developing type 2 diabetes later.

17 Replies

  • Kate Gilbert thank you so much for showing us these pictures. I think it is very honest and brave to do that. Picture number three is lovely and has given hope to us all I am sure. I took pmrpro 's advice to cut carbs right at the beginning so I have had the benefit of someone else's experience. As a forerunner you probably did not have this help. Everyone on this forum is so generous with advice and help. I for one would be lost without you all. Enjoy your hard won health.

  • Hi Kate

    I have been on steroids now for over 2 years, starting at 50 mg for GCA and still on 5 mg. I did not develop a moon face and I put it down to going very low carbs, especially no sugar. I also am gluten intolerant so follow a gluten free diet. So far so good!

  • I have been lucky and have put a small amount of weight on my face but gosh it smooths the wrinkles well! Nothing is all bad

  • Suetum, you are so right about the wrinkles. Now that I have lost the full moon and regained my cheekbones, I find I also have acquired some new wrinkles over the last 6 years. My new passport photograph is truly appalling! Can't win them all.

  • Hi Kate,

    Thank you so much for sharing the images, it does indeed give us hope. I have been 'moon faced' for two years, always having a slim face, now being told constantly I look well when in fact I dont actually look like me at all!

    I have put on weight as well but am slowly losing that, being really strict, but no change on face yet though...

    You are looking really great now, enjoy!

    Best wishes Lesley

  • Kate you are beautiful! Your book was like my bible. I was able to dodge moonface and weight gain with a very low carb, no sugar diet. I had no choice as my cholesterol jumped 68pts and sugar almost pre-diabetic. The cholesterol went back to normal but it barely touched my sugar. I did lose weight and everyone kept saying how great I looked. Little did they know how lousy I felt.

  • Thank you all. You have just made me cry. In a good way. xxxx

  • Thanks for the photos Kate! After a day of feeling bloated and fat and a bit self loathing your photos have grounded me. You look pretty in all of them. Perhaps it's like passport photos, 10 years on you think I wasn't that bad.

  • Hi Kate,

    You look beautiful! In all three pictures. Thank you for setting up this site and I have read your book already even though I was diagnosed a month ago. I have also reread sections as well. I took advantage of the advice provided and cut carbs and sugars from my diet from day 3. I splurged for a few days. So far no weight gain.

    Your post is encouraging, especially for those early in our journey. You are truly a special special person.

    Thanks from the bottom of my heart!


  • What a truly inspiring post - as someone who was diagnosed only 10 days ago, it has given me such hope. I've already had such encouragement from this forum and will definitely track down KateGilbert's book. Thank you so much.

  • Hi Janann25,

    Kate Gilbert's book is excellent. It helped me a lot as does this forum. I got mine from Amazon. I also thought her post was "inspiring".

  • How wonderful to see your photo's on this site, you have helped so many people including me with your two very enlightening books on PMR. I read bits from them often and take note of everything you say. Having had PMR for 2.5 years now and now down to 3mg of pred from 15mg I can honestly say the 'moon face' has gone and I am looking somewhat normal now !! You look good with a moon face, just as everyone said I did, however I hated it as it made me feel fat all over, even though I wasn't. I wish you well Kate. Love Maz

  • Kate you are a beautiful woman.

    Moon face? Well, in that case I've got the full moon body to boot!! I'm 10 months into PMR and preds and so far up 12kgs and hating every single gram of it.....but I'm trying SO hard to have a PMA ( Positive Mental Attitude!!) and have decided to get through this hideous and ridiculously painful illness first then tackle the weight issues! If not, I'll be onto the Space Agencies to let them know there is definitely a new moon in the galaxy!!!

    Thank you for sharing your story and pictures xx

  • All lovely photos- thank you for sharing them. I'm sure it's a great encouragement to all of us who feel we don't really look like we used to at the moment. X Jackie

  • You look brilliant. What an inspiration.

  • Dear Kate,

    Thank you for posting your beautiful photos, what an inspiration for us all and you have no idea how your post and books have made a difference to not only my struggle with PMR but many many others on this forum.

    Bless you, you give us all hope and an insight to the light at the end of our journeys. Sincere best wishes to you and everyone on our wonderful forum. Jane xx

  • Yes indeed!

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