Just come back from a long appointment with Professor Das Gupta in Southend. Had a temporal artery scan and a scan of my sub clavian arteries, under my armpits - a very painful scan as arm right above head and arteries are very tender to the pressure. It showed I have stenosis caused by the steroids so I must find a way to come off them, It is a thinning of the arteries I think. It makes me a good candidate for the Tozicilmab - not sure if I am spelling that correctly. I have been reasonably well for over a week and have been on Mycophenalate at 2 gms a day. So I have to try that for another two months and if it doesn't work I can try the new drug. I have had a miserable time for over a year feeling really ill with almost permanent flare ups if I even go down 1 mg so at least I feel it was a useful appointment and a way forward. Am on 13 mg now having started at 60mg and was on that dose for nearly two months. I was certainly given time and attention - over an hour and a half. Tiring day as 2 hrs from Lewes but I felt it was worth it. Had a sandwich on the beach after, which was bliss after so many days stuck indoors. Well - hey ho - onwards and upwards!!