Hi dear friends,
I did see my rheumatologist today and the first thing he told me was he didn't like how my treatment progresses, how the CRP count is (up again) and that I'm not improving after more than two month of 60 mg Prednisone. The unique marker for GCA is still a positive biopsy, which I didn't have.
I told him about this feeling of immobility or stiffness in my jaw, the feeling of not hearing well enough sometimes, my temple ache mostly left side every day.
He said it's a mystery. He is not sure what it is. Next step will be to have an CT-scan of the jaw joint and try an additional medication. He did an ultrasound of the right armpit artery and it looked very healthy..yeahh!
So maybe I don't have GCA. Maybe it's something else, but what? Something 60 mg Prednisone doesn't help to reduce.
What ever it is, it's persistent. But I'm too. Thank you for listening!