Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,294 members • 38,018 posts

All posts for May 2017

Treating urinary tract infections with Mannose

Since I developed polymyalgia 18 months ago I have had a tendency to develop UTI's frequently. I am 77 and for most of my life rarely if ever had a UTI....

Since I developed polymyalgia 18 months ago I have had a tendency to develop UTI...

yewtree

•7 years ago

18 Replies

Update from gillymar

Hi everyone. Nice to be in touch again. Am still in great pain in lower back . Walking horrendous. Only place comfortable is in bed . But can't miss this...

Hi everyone. Nice to be in touch again. Am still in great pain in lower back . W...

Gillymar

•7 years ago

4 Replies

Going into month 2 of GCA and PMR

Hello everyone, I thought I would post an update on my progress since my original diagnosis and posts on this site. First, thanks to those who responded to...

Hello everyone, I thought I would post an update on my progress since my origina...

Tj2017

•7 years ago

16 Replies

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What qualifies as a flare?

Weather is nice and I have started gardening. Digging out tulip bulbs and putting in Canna bulbs in their place for the summer. I pace my self and only do...

Weather is nice and I have started gardening. Digging out tulip bulbs and putt...

RNRN

•7 years ago

5 Replies

PMR and night time neck pain

New here, and so VERY glad to find you all. I developed PMR following a Quadrivalent flu shot last October and have been reducing my prednisone slowly, until...

New here, and so VERY glad to find you all. I developed PMR following a Quadriva...

Cookiekelly

•7 years ago

5 Replies

Head pain with GCA

Hi just a query about head pain. My PMR developed into GCA about a year ago, starting with really bad, boring, stabbing pains at the side of the head. I am now...

Hi just a query about head pain. My PMR developed into GCA about a year ago, sta...

Jackoh

•7 years ago

8 Replies

Pred dosage for PMR and GCA

So many of you have helped me re my very poorly father - Pls see previous posts So can anyone tell me..... For PMR what is the normal maximum Prednisolone...

So many of you have helped me re my very poorly father - Pls see previous posts ...

riannabri

•7 years ago

7 Replies

gh intravenous immunoglobulin

Has anyone heard of using intravenous immunoglobulin treatments for PMR? They say it's a great treatment for autoimmune conditions.

Has anyone heard of using intravenous immunoglobulin treatments for PMR? The...

jwb43

•7 years ago

9 Replies

How do I know if I'm taking enough prednisone

Hi--I'm new to this web site and am so glad I found out about it! I was diagnosed with PMR in December 2016. Started on 20 mg of prednisone. After I got down...

Hi--I'm new to this web site and am so glad I found out about it! I was diagnose...

judyb100

•7 years ago

21 Replies

Bruising

Is it normal to get bruising when on Prednisolone? My body looks battered- started on 20 mg for PMR December - and now on 12.5mg. Also what do you do when...

Is it normal to get bruising when on Prednisolone? My body looks battered- start...

Jude62

•7 years ago

10 Replies

Methotrexate: To commence or not, that is the question.

We've been back from Blighty 4 days now. I had a massive vertigo attack early hours of the day we flew home. It has gradually receded and is just around for...

We've been back from Blighty 4 days now. I had a massive vertigo attack early h...

IdasMum

•7 years ago

14 Replies

Losing weight after finishing steroids - is it possible?

It looks like I'm finally off steroids. It's been a long story of yo-yoing over nearly 5 years. I was switched to Hydrocortisone a few months ago and have...

It looks like I'm finally off steroids. It's been a long story of yo-yoing over...

tangocharlie

•7 years ago

34 Replies

The NHS does listen

This is a great forum and is a huge help to many. We all know that GCA is a medical emergency but it is clear from many postings that there are still too many...

This is a great forum and is a huge help to many. We all know that GCA is a medi...

Tonylynn

•7 years ago

1 Reply

GCA flare

I have GCA and polyreumalgia for the last 6 years on 7mg of Pred a day was down to 4mg but had flare and had to go up to 8mg. Went to my rheumatologist 2...

I have GCA and polyreumalgia for the last 6 years on 7mg of Pred a day was down ...

Vpankhurst

•7 years ago

8 Replies

No moaning today

I must not moan to myself today after watching telly this morning watching what and is going on in Manchester today my pain and whatever I have got going on is...

I must not moan to myself today after watching telly this morning watching what ...

Rusty8

•7 years ago

12 Replies

Flying/holidays /prednisolone

Hi all, my daughter has just booked a week's holiday for us. Flying out next week to Spain. Can anyone give me any advice on prednisolone. Do I stick to the...

Hi all, my daughter has just booked a week's holiday for us. Flying out next wee...

Mar-jay

•7 years ago

1 Reply

PMR or what???

Hi fellow TA friends! Once again I come for help in solving my lastest problem! I have had TA since March 2014 and recently off prednisone (2weeks). Since...

Hi fellow TA friends! Once again I come for help in solving my lastest problem!...

grannma

•7 years ago

4 Replies

Not good news

Went to docs today to see about tapering steroids down to find out I have 3fractures on my spine ,spinal stenosis disc generation protruding disc etc...

Went to docs today to see about tapering steroids down to find out I have 3fract...

Rusty8

•7 years ago

20 Replies

Night time nightmare !

Hi Everyone, A quick up date first, came onto this site a few months ago in desperation as my Rheumie took me off steroids even though I was still in...

Hi Everyone, A quick up date first, came onto this site a few months ago in desp...

mzz70-70

•7 years ago

10 Replies

Friendly Pheasant seen at Chillesford

Dear Celtic I've spent the last two hours ploughing through both Janet's and my photograph records on our external hard drive only to find that rather than...

Dear Celtic I've spent the last two hours ploughing through both Janet's and my ...

GCA1947

•7 years ago

5 Replies

Widespread aching and stiffness in the morning! Really that's the best definition the American College of rheumatology sites.

Dear GCA and PMR friends, I have been astounded the last few days as I have surfed the web to better understand my disease and wrap my brain around it. The...

Dear GCA and PMR friends, I have been astounded the last few days as I have surf...

Tj2017

•7 years ago

33 Replies

I'm new but looking for the person suffering from Leg cramps who is taking Prednisone.

I wrote to someone who was having leg cramps while taking Prednisone. I believe this person had been diagnosed with PMR. That was before I signed up, now I'm...

I wrote to someone who was having leg cramps while taking Prednisone. I believe ...

Gladrags

•7 years ago

19 Replies

Another Autoimmune condition that I may have

Dear All-I've got GCA-I saw a Dermatologist on Friday afternoon because of problems with my ankles skin following blistering on my left ankle. The blisters...

Dear All-I've got GCA-I saw a Dermatologist on Friday afternoon because of probl...

GCA1947

•7 years ago

27 Replies

Acute knee pain

Good Morning, Three years in and down to 5mg normally I have very little pain. Last week I went to the UK from France, to visit my son and family. I took...

Good Morning, Three years in and down to 5mg normally I have very little pain. L...

Deemar

•7 years ago

18 Replies

Could I be cured?

Normally I'm on here complaining about feeling dreadful and yo yo ing my pred, but for a WHOLE WEEK now I've felt OK. Good even. Better! Last time I felt like...

Normally I'm on here complaining about feeling dreadful and yo yo ing my pred, b...

Peggles

•7 years ago

7 Replies

GCA and hot weather

I am going to Majorca on the 31st May for a week - all inclusive - with the hope that if I am ill I can rest by the pool. It is very hot there at the moment....

I am going to Majorca on the 31st May for a week - all inclusive - with the hope...

christine2715

•7 years ago

6 Replies

Lost and somewhat despondent, avid reader but first post!

April 2015 I attended my GP with a drooping eyelid, tender RH side of my face, general fatigue, stiffness and pain. I was put onto 20 mgms of prednisone stat...

April 2015 I attended my GP with a drooping eyelid, tender RH side of my face, g...

Ankara

•7 years ago

28 Replies

GCA

Has anyone ever had a negative biopsy for GCA and has it

1Healthnut

•7 years ago

6 Replies

Half life of Prednisolone

Having a terrible time with my father he is so very unwell in hospital for 7 weeks, they said PMR but I believe its GCA Anyway CRP 224 was given 40mg...

Having a terrible time with my father he is so very unwell in hospital for 7 wee...

riannabri

•7 years ago

25 Replies

Help please. First flare

Hi, I am on 8.5mg prednisolene. Got down to 10 from 15 in 1mg reductions per month. Then half mg per month to 8.5 using dead slow method. Last 2 weeks...

Hi, I am on 8.5mg prednisolene. Got down to 10 from 15 in 1mg reductions per m...

Jillbowles

•7 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2017

Treating urinary tract infections with Mannose

Update from gillymar

Going into month 2 of GCA and PMR

What qualifies as a flare?

PMR and night time neck pain

Head pain with GCA

Pred dosage for PMR and GCA

gh intravenous immunoglobulin

How do I know if I'm taking enough prednisone

Bruising

Methotrexate: To commence or not, that is the question.

Losing weight after finishing steroids - is it possible?

The NHS does listen

GCA flare

No moaning today

Flying/holidays /prednisolone

PMR or what???

Not good news

Night time nightmare !

Friendly Pheasant seen at Chillesford

Widespread aching and stiffness in the morning! Really that's the best definition the American College of rheumatology sites.

I'm new but looking for the person suffering from Leg cramps who is taking Prednisone.

Another Autoimmune condition that I may have

Acute knee pain

Could I be cured?

GCA and hot weather

Lost and somewhat despondent, avid reader but first post!

GCA

Half life of Prednisolone

Help please. First flare

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