Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,456 members • 38,374 posts

All posts for May 2017

Seen Rod Hughes...more confused than ever!!

Hi all, I thought I'd let you know, saw the consultant Rod Hughes at Chertsey, he wants me to lower the steroids as quickly as possible and is not convinced by...

Hi all, I thought I'd let you know, saw the consultant Rod Hughes at Chertsey, h...

Trixiechamp

•7 years ago

31 Replies

Summer weather

Good morning,afternoon,evening! Well summer seems ti be creeping in and I quickly realized hot weather will not be my friend. Sitting with my dear friend ,...

Good morning,afternoon,evening! Well summer seems ti be creeping in and I quickl...

galp

•7 years ago

9 Replies

Cataract operation and Alendronic acid

Hi is like many of you, I'm sure I'm due to start taking alendronic acid but need a cataract I operation - is it possible. I'm very worried in case the...

Hi is like many of you, I'm sure I'm due to start taking alendronic acid but ne...

Gab-Gordon

•7 years ago

3 Replies

Want to take advantage of all our features? Just log in!

New symptom just checking it out

Hi everyone I went back to 12mg after the advice I got a few weeks ago and have done really well. Still in work full time and managing really well. Obviously...

Hi everyone I went back to 12mg after the advice I got a few weeks ago and have...

JulieR2

•7 years ago

6 Replies

One year

I'm coming up on my one year mark of being diagnosed with PMR at age 61. I'm at 5mg of Prednisone daily and see my rheumatologist soon for another check in. I...

I'm coming up on my one year mark of being diagnosed with PMR at age 61. I'm at ...

mo3go7

•7 years ago

18 Replies

Stuck on15mg for another six weeks

My doc has agreed to refer me to rheumatology but i wont be seen for another 6 wks. Current dose is 15mg pred. I am getting a lot of pain in my neck,...

My doc has agreed to refer me to rheumatology but i wont be seen for another 6 w...

Hidden

•7 years ago

12 Replies

PMRGCAuk Charity Week 19th-25th June 2017

Hi everyone In support of the PMRGCAuk charity week, I am going to undertake a 10 mile walk in The New Forest, Hampshire on Sunday 25th June. Whilst to the...

Hi everyone In support of the PMRGCAuk charity week, I am going to undertake a 1...

LizMitchell

•7 years ago

11 Replies

From 30 mg to 11 mg and feeling very drained

I have had Pmr for nearly two years now, my initial dose of 15 mg was upped to 30 mg as I didn't respond as well as the doctors hoped I would on the lower...

I have had Pmr for nearly two years now, my initial dose of 15 mg was upped to 3...

Dobermanlover

•7 years ago

66 Replies

Can I avoid the moon face?

Hi all, I'm still in the early stages, on 20mg and due to start tapering in 2 weeks. All has been fine, I've been pain (though not totally stiffness) free and...

Hi all, I'm still in the early stages, on 20mg and due to start tapering in 2 w...

DebbieF1603

•7 years ago

19 Replies

Is this possibly PMR pain?

I have been following all of you since early 2016 when I was diagnosed and treated with GCA and learned so much from you all. Despite my age (early 50s) and...

I have been following all of you since early 2016 when I was diagnosed and treat...

Sandy52

•7 years ago

15 Replies

When is a niggle a flare?

A quick question about GCA that probably doesn't have a short or easy answer. When are niggles a sign of a possible flare or the Pred not being high enough?...

A quick question about GCA that probably doesn't have a short or easy answer. Wh...

SnazzyD

•7 years ago

8 Replies

Polymyalgia rheumatica: observations of disease evolution without corticosteroid treatment

This recently published study contends that the widespread use of corticosteroids early on in the course of PMR has prevented researchers from seeing the...

This recently published study contends that the widespread use of corticosteroid...

Admiral06

•7 years ago

24 Replies

Now I understand what a Flare is...! The Dragon is Back!

I've been Living the PMR Dragon since 2013. I Started high dose (20 mg) pred and got the diagnostic overnight response! Pain reduced dramatically! Time...

I've been Living the PMR Dragon since 2013. I Started high dose (20 mg) pred a...

1Purplecrow

•7 years ago

20 Replies

DEvon support group.

I hope to be able to get to PMR support group on Monday in shaldon. Need to know what time and where please? I am flying back to uk tonight. THankyou!!

I hope to be able to get to PMR support group on Monday in shaldon. Need to know...

isabella2015

•7 years ago

6 Replies

Long term PMR

I was diagnosed about 15 years ago and responded really well to the high dose of steroids at the time (ESR 130 and CRP 85). However rheumatologist says I am...

I was diagnosed about 15 years ago and responded really well to the high dose of...

hjbradshaw

•7 years ago

15 Replies

LDN for autoimmune diseases

Have you tried LDN It's worth looking into. Positive results for all autoimmune diseases. There is a website and new book out under that title. It is...

Have you tried LDN It's worth looking into. Positive results for all autoimm...

audrey105

•7 years ago

9 Replies

Almost a month since diagnosed with GCA/PMR

Hello everyone and as always thank you for your post, encouragement and kind words. I am on 60 mg of prednisone and drop to 55 tomorrow. So far as long as I...

Hello everyone and as always thank you for your post, encouragement and kind wor...

Tj2017

•7 years ago

22 Replies

Could this be PMR?

Hi Folks I have had GCA for just over 2 years and doing nicely with reductions. I didn't put on weight nor did I develop a moon face. Had lots of other side...

Hi Folks I have had GCA for just over 2 years and doing nicely with reductions. ...

allykat

•7 years ago

8 Replies

How to survive my gp

Hello dear members of this forum. Yesterday a follow up with the gp and distressed once more. On Pred since october 2016 and now on 7,5 mg Blood bse is 17. So...

Hello dear members of this forum. Yesterday a follow up with the gp and distress...

Zofitmogelijk

•7 years ago

22 Replies

How much Pred to increase after flare up

Hello all, well I was diagnosed in March with PMR and have been enjoying reading everything on this site. I was happily reducing Preds from 20 by 2.5 every two...

Hello all, well I was diagnosed in March with PMR and have been enjoying reading...

edmonton

•7 years ago

18 Replies

Not pmr

Hello everyone. Thanks for answering my questions. You guys were right. It's not pmr. I have multiple myloma. Blood cancer. Now in Boston working with...

Hello everyone. Thanks for answering my questions. You guys were right. It's not...

Mark7162

•7 years ago

19 Replies

neurology visit

I am receiving great support on this site as well as "patient" So i apologize for repeat messages.to those on both I have to have the spinal tap as there was...

I am receiving great support on this site as well as "patient" So i apologize fo...

galp

•7 years ago

2 Replies

How often do you have blood tested?

As above, I'm sure the info is on here somewhere, and I'm curious as to whether there's any value in checking Regularly and if it affects medication?

As above, I'm sure the info is on here somewhere, and I'm curious as to whether ...

Peggles

•7 years ago

6 Replies

CRP up again

Blood work today! CRP up to 41.2 from 27. It explaines the headache and temple ache I feel almost every afternoon. (suspected GCA) I'm so sad. It seems this...

Blood work today! CRP up to 41.2 from 27. It explaines the headache and temple ...

Akino

•7 years ago

8 Replies

Rheumy no help... stumped

Hello- my wise crew! Being hopeful someone can help me. I have returned north, to the cold, non- sunshine state after 3 weeks in southern sunshine! Presently...

Hello- my wise crew! Being hopeful someone can help me. I have returned north, t...

klairv0yant

•7 years ago

10 Replies

Ups and downs

I recently experienced a flare after reducing pred on holiday. Went downhill nine days later. Increased again and saw the rheumy nurse. She suggested I stay...

I recently experienced a flare after reducing pred on holiday. Went downhill ni...

Elaine-W

•7 years ago

30 Replies

Diarrhea and Pred

For the past month-and-a-half I've had diarrhea I reduce prednisone from 12 down to 11 and the next 24 hours after this I begin the diarrhea. I am now 8 weeks...

For the past month-and-a-half I've had diarrhea I reduce prednisone from 12 down...

nancyannehanson

•7 years ago

7 Replies

Not to well

I have been on 20 mg now for 6 days and have been feeling fine in myself have woke up this morning not feeling very good slightly out of byway tired face red...

I have been on 20 mg now for 6 days and have been feeling fine in myself have wo...

Rusty8

•7 years ago

1 Reply

Time to start reducing Pred?

Hi everyone, I am now at end of fourth week of 15mg Pred and due to start reducing to 12.5mg at my next dose. I have been feeling much better with just a...

Hi everyone, I am now at end of fourth week of 15mg Pred and due to start reduci...

PatB1948

•7 years ago

14 Replies

fatigue when reducing prednisone

i have just decreased to 12.5 mg pred, from 15, thing is i started at 40 last oct, dropped every few days to 20 as of nov 1, then was left on that for 3 mos,...

i have just decreased to 12.5 mg pred, from 15, thing is i started at 40 last o...

arvine

•7 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2017

Seen Rod Hughes...more confused than ever!!

Summer weather

Cataract operation and Alendronic acid

New symptom just checking it out

One year

Stuck on15mg for another six weeks

PMRGCAuk Charity Week 19th-25th June 2017

From 30 mg to 11 mg and feeling very drained

Can I avoid the moon face?

Is this possibly PMR pain?

When is a niggle a flare?

Polymyalgia rheumatica: observations of disease evolution without corticosteroid treatment

Now I understand what a Flare is...! The Dragon is Back!

DEvon support group.

Long term PMR

LDN for autoimmune diseases

Almost a month since diagnosed with GCA/PMR

Could this be PMR?

How to survive my gp

How much Pred to increase after flare up

Not pmr

neurology visit

How often do you have blood tested?

CRP up again

Rheumy no help... stumped

Ups and downs

Diarrhea and Pred

Not to well

Time to start reducing Pred?

fatigue when reducing prednisone

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive