Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,497 members • 38,471 posts

All posts for January 2017

Calcium Supplementation to Help Prevent Bone Loss

Calcium is essential for optimal bone health throughout your life. Although diet is the best way to get calcium, supplements may be required if your diet...

Calcium is essential for optimal bone health throughout your life. Although die...

Admiral06

•7 years ago

26 Replies

Advice needed

I have been on Laxidu powders 1 or 2 nightly following.a bowel cancer scare some years ago which luckily turned out to be diverticular disease (not...

I have been on Laxidu powders 1 or 2 nightly following.a bowel cancer scare som...

Gillymar

•7 years ago

5 Replies

Alendronic Acid?

Hi all, just had a phone call from my doc telling me off basically for not taking the AA! I was prescribed it in March last year but didnt take it after...

Hi all, just had a phone call from my doc telling me off basically for not takin...

jlyndauk2002

•7 years ago

39 Replies

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from 15mg to 3mg pred....mood change

Awhile ago I mentioned the error I had made by taking 15mg Pred.i.o. 3mg, which I had tapered to. Am back on 3mg and I feel strangely'down' I was feeling quite...

Awhile ago I mentioned the error I had made by taking 15mg Pred.i.o. 3mg, which ...

karools16

•7 years ago

3 Replies

Fruit consumption

I have been trying to lose some weight by going on to a sugar free diet, I have been so disappointed as I am still gaining weight . I thought I had avoided...

I have been trying to lose some weight by going on to a sugar free diet, I have ...

Riversnan

•7 years ago

34 Replies

Will GCA return?

I had GCA PMR for 3 years. Was on a monthly infusion of Actemra, I've been drug free for 8 months now & doing fine. My Husband of 59 years passed away 1 week...

I had GCA PMR for 3 years. Was on a monthly infusion of Actemra, I've been drug ...

beringer

•7 years ago

5 Replies

PMR Questions: Control, Limitations, Flare, GCA, Misdiagnosis

1)What constitutes control of PMR? a.Symptoms on control? b.Pain? 2)Are there limitations during control a.Age related? b.Symptom related 3)What is flare?...

1)What constitutes control of PMR? a.Symptoms on control? b.Pain? 2)Are there l...

RNRN

•7 years ago

14 Replies

Points of Confusion

Points of confusion 1)PMR is an autoimmune disorder. The body attacks itself. Bursas and synovial fluid are involved. When you take prednisone you feel...

Points of confusion 1)PMR is an autoimmune disorder. The body attacks itself. ...

RNRN

•7 years ago

15 Replies

Vitamin and Mineral Depletion From Long-term Steroid Use

Prednisone and other corticosteroids have been shown to deplete the body of calcium, vitamin D, magnesium, folic acid, potassium, selenium, and vitamin C. The...

Prednisone and other corticosteroids have been shown to deplete the body of calc...

Admiral06

•7 years ago

5 Replies

Ann Theresa

New to the site, diagnosed 18months ago PMR and GCA. Got Pred. Down from 60m a day to 5m a day, Struggling now and rheumatology nurse has advised Azathioprine....

New to the site, diagnosed 18months ago PMR and GCA. Got Pred. Down from 60m a d...

Ann-theresa

•7 years ago

6 Replies

Going downhill or is it winter?

PMR diagnosed Nov. 2014. Initial dose 15mg moved to 30mg before feeling O.K. 18 months later I was down to 9mg, PMR flared, back up to 19mg. Started DSNS at...

PMR diagnosed Nov. 2014. Initial dose 15mg moved to 30mg before feeling O.K. 18 ...

DavidMF

•7 years ago

27 Replies

Break-thru shooting pain in glutes & coccyx. Taking 40+ mg pred, still not under control.

Diagnosed with PMR last April. 15 mg pred has kept pain at bay, tapered from 10 to 5.5 mg, dropping 1/2 mg every 3 weeks, no problems. When dropped to 5 mg,...

Diagnosed with PMR last April. 15 mg pred has kept pain at bay, tapered from 10 ...

Dwid

•7 years ago

10 Replies

Help me lose my post steroid weight

I have been on steroids for several weeks now and have gained weight on my top half can any one give me any suggestions on how to lose it again taking into...

I have been on steroids for several weeks now and have gained weight on my top h...

24022002

•7 years ago

5 Replies

Alendronic Acid and Omeprazole

After much thought and discussion, I have spoken to a GP from my practice today and he has agreed that I can stop taking Alendronic Acid. I have taken it for...

After much thought and discussion, I have spoken to a GP from my practice today ...

twinbulls

•7 years ago

26 Replies

Eye pressure

I am currently taking 25mg of prednisone having tapered from 50mg since September 16. High dose as suspected GCA. Had an eye Pressure test at the opticians,...

I am currently taking 25mg of prednisone having tapered from 50mg since Septembe...

vsapey

•7 years ago

6 Replies

Total Knee Replacement

I have had both GCA and PMR for nearly 8 years. I now need a total knee replacement and was told by the surgeon: "Replacement hip surgery is more successful...

I have had both GCA and PMR for nearly 8 years. I now need a total knee replacem...

daw50

•7 years ago

8 Replies

GCA and flare

I have had a bad flare up that has lasted over a week. I struggle to reduce my Pred and can only manage about 1 mg at a time - every 12 days in general. I need...

I have had a bad flare up that has lasted over a week. I struggle to reduce my P...

christine2715

•7 years ago

8 Replies

Memory loss

Good Morning Quick question this morning. Do any of you have memory problems. I've had many occasions now when apparently I've been told something but have no...

Good Morning Quick question this morning. Do any of you have memory problems. I'...

Gosingen

•7 years ago

10 Replies

Just keeping going

It is so interesting hearing other people's problems. I had an MRI scan yesterday to see if the right leg is going the same as the left one (steel rod inserted...

It is so interesting hearing other people's problems. I had an MRI scan yesterda...

Gillymar

•7 years ago

3 Replies

Pill extractor

I've just received a pill extractor hoping to be able to get my daily aspirin out of its foil packaging without the difficulty I have been having. However, I'm...

I've just received a pill extractor hoping to be able to get my daily aspirin ou...

maria40

•7 years ago

11 Replies

Alendronic Acid 70 mg

Considering some of the posts I've read I'm starting to get scared of the above drug. I asked my GP several months ago if I really have to take it. His...

Considering some of the posts I've read I'm starting to get scared of the above ...

Stroppymoo

•7 years ago

27 Replies

Light at the end of the tunnel

Just thought I'd post some positive news. After a long time (over 4 years yo-yoing between 7.5 and 5) I've now got my Pred dose down to 3.5 and suddenly the...

Just thought I'd post some positive news. After a long time (over 4 years yo-yo...

tangocharlie

•7 years ago

15 Replies

Oh Dear

Bloods done on Friday. Results just back. ESR 53. CRP 122. No wonder I feel so ill!

Bloods done on Friday. Results just back. ESR 53. CRP 122. No wonder I feel s...

Pat9442

•7 years ago

8 Replies

Thrush

Was,doing great. Now came down with thrush. So hard being on the other side of fence. I am the one that usually gives the medical advice

Was,doing great. Now came down with thrush. So hard being on the other side of f...

nurseydiane

•7 years ago

5 Replies

When to take the Predisolone

I have been trying to lower my dose of pred from 30 to 20 slowly but as soon as I get to 24 the pains in my head return. As I have many unwanted side effects...

I have been trying to lower my dose of pred from 30 to 20 slowly but as soon as ...

Cobnut

•7 years ago

5 Replies

Ambulance Drama

I woke up on Monday morning with flu like symptoms and severe pain down the length of my esophagus ( centre of chest from throat to stomach, it also affected...

I woke up on Monday morning with flu like symptoms and severe pain down the leng...

SheffieldJane

•7 years ago

24 Replies

More advise please

Good morning . My doctor has reduced my pred from 10 to 9 this week. I immediately felt the difference, stiffness and painful shoulders , and feeling ill . I...

Good morning . My doctor has reduced my pred from 10 to 9 this week. I immediate...

Manchesterlady

•7 years ago

17 Replies

Water babe; )

Good morning. I have PMR. More overweight than I would like. Then got diagnosed which added more weight. Plus of course moon face, hump back. Time to...

Good morning. I have PMR. More overweight than I would like. Then got diagno...

Chrissy1953

•7 years ago

8 Replies

PMR severe osteoporosis & foraminal stenosis - CT injection imminent

This is a wonderful site...I have been an avid follower and read updates before I get up in the morning. So many common themes, so many wonderful people...

This is a wonderful site...I have been an avid follower and read updates before ...

Kickemjenny

•7 years ago

3 Replies

Dental work while on Leflunomide

I am taking currently 8mg Predisone and 10mg Leflunomide Arava and feel very well with it. Now I need to extract the last upper tooth because I have an...

I am taking currently 8mg Predisone and 10mg Leflunomide Arava and feel very wel...

Orchid47

•7 years ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2017

Calcium Supplementation to Help Prevent Bone Loss

Advice needed

Alendronic Acid?

from 15mg to 3mg pred....mood change

Fruit consumption

Will GCA return?

PMR Questions: Control, Limitations, Flare, GCA, Misdiagnosis

Points of Confusion

Vitamin and Mineral Depletion From Long-term Steroid Use

Ann Theresa

Going downhill or is it winter?

Break-thru shooting pain in glutes & coccyx. Taking 40+ mg pred, still not under control.

Help me lose my post steroid weight

Alendronic Acid and Omeprazole

Eye pressure

Total Knee Replacement

GCA and flare

Memory loss

Just keeping going

Pill extractor

Alendronic Acid 70 mg

Light at the end of the tunnel

Oh Dear

Thrush

When to take the Predisolone

Ambulance Drama

More advise please

Water babe; )

PMR severe osteoporosis & foraminal stenosis - CT injection imminent

Dental work while on Leflunomide

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