Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2017

reduced frinom 20 mg to 17.5 ,

i have been on 20 mg since approx nov 1, prior to that started on 40, oct 12, then tapered to the 20mg, reduced just 9 days ago to 17.5, and did well until...

i have been on 20 mg since approx nov 1, prior to that started on 40, oct 12, th...

arvine

•7 years ago

3 Replies

after visiting my gp.

dearest fellow sufferers, please may I ask your attention again, since I left my gp almost in tears. I seem to have upset him. three month on my pmr way now...

dearest fellow sufferers, please may I ask your attention again, since I left my...

Zofitmogelijk

•7 years ago

32 Replies

predisolone dose after flare

Diagnosed with PMR in dec 2014, I have been struggling to get below 10 mg ever since making my rheumy very purse-lipped. She tried me on methotrexate which...

Diagnosed with PMR in dec 2014, I have been struggling to get below 10 mg ever s...

manjan

•7 years ago

9 Replies

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GCAwife

I have just stumbled across this site with great interest. My husband is currently in hospital having treatment for GCA having undergone all the tests and...

I have just stumbled across this site with great interest. My husband is curren...

GCAwife

•7 years ago

15 Replies

Jeanmh

Just put a post on about my blood test been on the border line i meant to say what does this mean this gca is all new to me just had steroids put to six...

Just put a post on about my blood test been on the border line i meant to say wh...

Jeanmh

•7 years ago

1 Reply

Jeanmh

Hello can anyone help me understand gca just had a phoe call from Drs to go for another blood test as I'm on the border line with my last blood test do...

Hello can anyone help me understand gca just had a phoe call from Drs to go for ...

Jeanmh

•7 years ago

6 Replies

ESR up 29 points in 29 days

Last month my ESR was 1 and CRp 0.60 all normal. So I reduced from 11 1/2 to 10 1/2 but alternating for the first week. In the past two weeks I have had very...

Last month my ESR was 1 and CRp 0.60 all normal. So I reduced from 11 1/2 to 10...

Nap1

•7 years ago

3 Replies

Advice

Just out of hospital with an acute middle ear infection. Because I have Gca, I was given 60mgs of pred, whilst preciously getting down to 7mgs. Am now back to...

Just out of hospital with an acute middle ear infection. Because I have Gca, I w...

morrison

•7 years ago

4 Replies

Are you in Northern Ireland?

PMRGCAuk is helping a meet-up group to get going in Northern Ireland. The next get-together for people with PMR and GCA, their partners and carers, is at the...

PMRGCAuk is helping a meet-up group to get going in Northern Ireland. The next g...

Polywotsit

PMRGCAuk team member•7 years ago

3 Replies

Temporal Arteritis

I had a blood test that showed I may have Temporal Arteritis, I am waiting for an appointment for a biopsy. My doctors said not to start any steroids until the...

I had a blood test that showed I may have Temporal Arteritis, I am waiting for a...

SonyaMac

•7 years ago

10 Replies

Pain in hip

Good morning , After reducing from 10 to 9 last week , got a pain in my hip on one side , went back up to 10 the next day, but the pain is still there. Could...

Good morning , After reducing from 10 to 9 last week , got a pain in my hip on o...

Manchesterlady

•7 years ago

9 Replies

Methotexate

Since being diagnosed with polymyalgia last March I have been struggling with prednisolone as I have dreadful side effects. My consultant has finally admitted...

Since being diagnosed with polymyalgia last March I have been struggling with pr...

Nonemmett

•7 years ago

11 Replies

Anti-inflammatory diets

Whilst the information booklets (NHS, UK) for PMR/GCA given to me when I was diagnosed with both conditions in July 2015, briefly touch on diet with a short...

Whilst the information booklets (NHS, UK) for PMR/GCA given to me when I was dia...

LizMitchell

•7 years ago

33 Replies

PMR and prednisone

Have reduced from 15mg prednisone to 9mg since June 2016.Have just reduced to 9mg and have felt soreness in my thighs and upper arms when I woke about 4am...

Have reduced from 15mg prednisone to 9mg since June 2016.Have just reduced to 9m...

Zanthy

•7 years ago

3 Replies

Lungs ?

Hello- I am still on 20mg of prednisone (thank goodness it's not a race :) and I've been experiencing more than intermittent pain upon taking in deep breaths....

Hello- I am still on 20mg of prednisone (thank goodness it's not a race :) and I...

klairv0yant

•7 years ago

5 Replies

Breakthrough Treatment for Rheumatics

Am new to the site, but just noticed an article in the Mail on Sunday which advises that a common arthritis drug is effective in treating GCA and PMR without...

Am new to the site, but just noticed an article in the Mail on Sunday which advi...

Joan217

•7 years ago

12 Replies

Cause of GCA chicken pox and shingles virus??

Picked up the following today from a Facebook group for GCA based largely in USA thought this may be of interest to share:- A new study developed at the...

Picked up the following today from a Facebook group for GCA based largely in USA...

DevonMichael

•7 years ago

11 Replies

Now I'm diabetic too?

Hello all. I'm now down to 5mg prednisolone after 2 years of PMR and trying hard to reduce on DSNS. I've put on a good stone on top of what was already an...

Hello all. I'm now down to 5mg prednisolone after 2 years of PMR and trying hard...

MaryWR

•7 years ago

14 Replies

Pressure on top of Head

With PMR as the diagnosis I am down to 7 and a half mg of Prednisoline and I almost always feel this pressure from my forehead up to the top of my head. It has...

With PMR as the diagnosis I am down to 7 and a half mg of Prednisoline and I alm...

Ronswife

•7 years ago

7 Replies

Does Diet help?

Hi I am new on here, been having symptoms for some years now, just had a diagnosis for last year. would love to here if anyonehas had any benefits from...

Hi I am new on here, been having symptoms for some years now, just had a diagn...

cocobell

•7 years ago

8 Replies

Plasma viscosity result, PMR?

Hi all, i need a bit off advice, ive been aching for a long time all over and stiff in the mornings, spesh winter and espically this winter worse really cant...

Hi all, i need a bit off advice, ive been aching for a long time all over and st...

Cookie16

•7 years ago

11 Replies

HOW TO REDUCE AGAIN AFTER A FLARE ?

Having started at 15mg Pred for PMR a year ago, I successfully decreased to 5mg by just after Christmas 2016 where I still was until this week ... I starter...

Having started at 15mg Pred for PMR a year ago, I successfully decreased to 5mg ...

Polylinc

•7 years ago

9 Replies

Does anyone else have discomfort behind the knees ?

Hi Among my symptoms were stiffness in the groins resulting in difficulty getting out of a chair and inability to bend down to pick up the numerous things I...

Hi Among my symptoms were stiffness in the groins resulting in difficulty gettin...

AvisF

•7 years ago

10 Replies

Not sure if I have PMR and my preds are not working

Hi all ive been reading this site since I was diagnosed end sep 2016 but have never posted before. .first of all I have to say I am on preds but they are...

Hi all ive been reading this site since I was diagnosed end sep 2016 but have n...

Hidden

•7 years ago

12 Replies

Jeanmh

Hello i have had GCA from November was on put on 60mg steroids I'm now down to 30mg and I am having really bad hip pain just wondering if it is the steroids or...

Hello i have had GCA from November was on put on 60mg steroids I'm now down to 3...

Jeanmh

•7 years ago

3 Replies

Possible GCA with Lyme

Hello everyone. I am new to this site as I found it while looking up information. For approximately six weeks now I have had symptoms of GCA. My GP agreed and...

Hello everyone. I am new to this site as I found it while looking up informatio...

JManno

•7 years ago

9 Replies

Lin-calif new view

This This will be my view in new apartment

Hidden

•7 years ago

17 Replies

Blood test results

My GP called yesterday to 'talk' about my results. Wants me to reduce Pred 15mg daily to 10mg. I'm free of pain about 95% time but still have some fatigue....

My GP called yesterday to 'talk' about my results. Wants me to reduce Pred 15mg...

Hidden

•7 years ago

8 Replies

What next? I'm Pre-diabetic

This is the one bullet I was hoping to dodge. With my weight gain I was already searching diabetic sites. Where I live right now I do not get enough...

This is the one bullet I was hoping to dodge. With my weight gain I was already...

Hidden

•7 years ago

16 Replies

IS IT JUST ME ?

Have been taking my preds. 20MG for almost 3 weeks now and must say I feel much better for it - have a slight concern that about 15-30 mins after swallowing...

Have been taking my preds. 20MG for almost 3 weeks now and must say I feel much ...

winter10

•7 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2017

reduced frinom 20 mg to 17.5 ,

after visiting my gp.

predisolone dose after flare

GCAwife

Jeanmh

Jeanmh

ESR up 29 points in 29 days

Advice

Are you in Northern Ireland?

Temporal Arteritis

Pain in hip

Methotexate

Anti-inflammatory diets

PMR and prednisone

Lungs ?

Breakthrough Treatment for Rheumatics

Cause of GCA chicken pox and shingles virus??

Now I'm diabetic too?

Pressure on top of Head

Does Diet help?

Plasma viscosity result, PMR?

HOW TO REDUCE AGAIN AFTER A FLARE ?

Does anyone else have discomfort behind the knees ?

Not sure if I have PMR and my preds are not working

Jeanmh

Possible GCA with Lyme

Lin-calif new view

Blood test results

What next? I'm Pre-diabetic

IS IT JUST ME ?

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