Could this be PMR???

Hi. I am just enquiring to see if I am barking up the right tree. I am 52, female and for the last 3 weeks have had terrible searing pain in my lower back, both hips and less so in both shoulders. I have had a 'bad back' (nurses back) for years on and off but nothing I can't cope with. The pain in my back, hips and knees in the morning is so severe I can hardly get out of bed and have to go down the stairs one at a time. I feel like 100!, As the day goes on it improves but painkillers don't really help. I have an under-active thyroid. I go to stretch classes x3/wk (always have) The pain is very different to my usual back pain. Does this sound like PMR? Feel I am a bit young although am over fifty. Fit and well otherwise. Have appointment next week with Doc. Just thought I'd do some research first. Thanks in advance :)

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  • I will not diagnose, but it sounds a lot like how my PMR started. I was 52 and also have under active thyroid! I had been having a lot of undefined back pain beforehand too. A word of caution- it took me 2 years to get clear diagnosis as I was constantly being told I was too young-don't be fobbed off by Rheumatologists who don't really know that they are talking about. I am on my 4th Rheumy because others were not really experts on PMR/GCA

    Good Luck!

  • Thank you Suzy.

  • It sounds very much like I felt before I started steroids which acted like a miracle. Have you had any blood tests, particularly ESR and CRP? Do you think your doctor would let you try steroids for a week to see if you do have a miracle result?

  • Thanks for this piglette - I haven't had any yet as first appointment is next Weds. I was just wondering what other peoples experiences were when they first got symptoms.

  • My GP kept saying I had a virus. I could not get out of bed or dressed or even move my arms without awful pain in the end I was in agony. I did even suggest PMR to the GP and he gazed at me in a dazed sort of way. In frustration I saw a rheumatologist privately who diagnosed PMR in about two seconds. He gave me pred and in fifteen hours and twenty two minutes the magic happened.

  • Hi,

    Yep, certainly COULD be PMR.

    But as Suzy says you may not get a quick diagnosis, doctors will tell you you're too young, that's untrue. They may well look for other things first, which it may well be, but hang in there, and be prepared to nag a bit until you get a diagnosis.

    Hope it's not PMR, but you do need to know one way or the other.

  • Like the others I will say it COULD be PMR - and I was still 51 when mine started although it wasn't diagnosed until I was nearly 57. "Too young" was never used - but the normal blood levels were! Younger patients tend to be more "atypical" with other differences besides the "atypical" age! I had also had back problems for years - which were due to myofascial pain syndrome which is quite common alongside the more general PMR symptoms.

    However - PMR is only the name given to a constellation of symptoms which can be similar to the presentation of a lot of other things so your GP should do more than just ESR/CRP to rule some of them out.

    In my experience, painkillers don't help PMR, they do help some of the other possibilities.

    Here's a reading list to help the research:

    patient.info/forums/discuss...

    It's a post on another PMR forum where all the good reading is listed to save repeating oneself over and over.

    Out of interest - where are you?

  • Hello. Thanks you for this. Sorry its taken so long to reply. I am in Wincanton, Somerset. I have my first appointment with GP on Wednesday, so hopefully he will listen and request a range of blood tests. I am very aware that there are all sorts of things it could/couldn't be, its just the longer it goes on the more I feel the symptoms are more like pmr than anything else. I am hoping not. I will read the link you sent this evening. Many thanks.

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