Hello, I'm a long term sufferer of PMR (just coming up to 14 years), with 6 relapses so far! Having read an excellent book "Polymyalgia Rheumatica and Giant Cell Arteritis" from the Oxford Rheumatology Library, I'm becoming convinced that my "PMR" as diagnosed is infact more likely to be a form of Extra-cranial Large Vessel Vasculitis (LVV). I intend to ask my GP for referral to a specialist rheumatology clinic (Southend with Prof. Dashupta would be ideal) but wondered whether there are any other NHS clinics in the south that can offer the imaging diagnostics that I believe would be necessary to either confirm or rule out LVV. [I live in Salisbury]. Any experiences would be welcome.
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