Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2016

Eye problems hope my post might help some one.

Morning Folks. I came off pred in April 2015 for pmr with super advice from the T/ Brigade i reduced with no major problems. Apart from terrible Fatigue &...

Morning Folks. I came off pred in April 2015 for pmr with super advice from the ...

daveD

•8 years ago

6 Replies

Stuck In Greece with PMR

For several reasons, wont bore you but I am stuck living on a small old boat in Grrece and unable to afford to change the situation. Five years ago I was...

For several reasons, wont bore you but I am stuck living on a small old boat in ...

nostromo

•8 years ago

8 Replies

GCA and weak legs

Having a lovely holiday in Cornwall, had a great boat trip down the river, and have managed to get my Preds down to 40 and will try 37 1/2 today. But my legs...

Having a lovely holiday in Cornwall, had a great boat trip down the river, and h...

christine2715

•8 years ago

14 Replies

Want to take advantage of all our features? Just log in!

Phone call from the Doctor.

My doctor called me last evening to report back on his call to the rheumatologist. He says that my diagnoses is not confirmed and I should drop today to 17mg...

My doctor called me last evening to report back on his call to the rheumatologis...

IdasMum

•8 years ago

3 Replies

Cataract surgery on large dose of prednisone

Have been reading about people having cataract surgery but basically on around 10 or 15 mg of prednisone. Has anyone had cataract surgery on 30 or 40 mgs?...

Have been reading about people having cataract surgery but basically on around ...

casse

•8 years ago

25 Replies

GCA and use of actemra iv

Can anyone tell me that is on at actemra how they are making out? Doctor to review it again with me tomorrow. My insurance said they would cover it since it's...

Can anyone tell me that is on at actemra how they are making out? Doctor to rev...

casse

•8 years ago

6 Replies

The weekend, fatigue and stuffing my face!

Monday July 11th The bags under my eyes are get darker and deeper but thank goodness for Yves Saint Laurent and that marvellous touch up pen they created -...

Monday July 11th The bags under my eyes are get darker and deeper but thank goo...

Anne-NRAS

•8 years ago

1 Reply

Alternative therapy

In the interests of providing the reason for my use of low intensity light therapy I'm quoting extensively from the relevant chapter of The Brain's Way of...

In the interests of providing the reason for my use of low intensity light thera...

HeronNS

•8 years ago

Be the first to reply

PMR and diabetes

Diagnosed in April, I also started on 15mg, 2 weeks later reduced to 10mg, had a flare up! Went back to 15mg and I am now reducing at 1 mg every 2/3 weeks, I...

Diagnosed in April, I also started on 15mg, 2 weeks later reduced to 10mg, had a...

HelenLeppard

•8 years ago

24 Replies

Is this a relapse?

Hello everybody. I was diagnosed with PMR in May and started on 15mg pred. My symptoms quickly disappeared and 3 weeks later I reduced to 12.5mg. 2 weeks...

Hello everybody. I was diagnosed with PMR in May and started on 15mg pred. My s...

trebor65

•8 years ago

9 Replies

Has anyone had back surgery?

I have had GCA for over four years and was attributing my back and leg and foot pain to PMR. I have been trying to reduce my prednisone and am now at 10 . I...

I have had GCA for over four years and was attributing my back and leg and foot ...

30048

•8 years ago

23 Replies

Any ideas?

Hi All. I've had pmr for three or more years, and gca for a year. My dilemma is I don't have a clue what on earth is going on with me at the moment. By April...

Hi All. I've had pmr for three or more years, and gca for a year. My dilemma is...

annie_marie

•8 years ago

11 Replies

PMR and GCA

I have recently joined and would like to get answers to my latest problem. I was diagnosed with PMR about 2 .6months ago and I was put on 20mg and over the 2...

I have recently joined and would like to get answers to my latest problem. I wa...

Apple2

•8 years ago

4 Replies

An update on my condition

I was diagnosed with PMR when I became ill on a cruise in April. My pointers for inflamation were high and I was put on 20mg of Prednislone. The pains went...

I was diagnosed with PMR when I became ill on a cruise in April. My pointers for...

May10

•8 years ago

7 Replies

Good follow up with my doctor today.

I had a good appointment with my doctor today. I was disappointed (as was he) that he'd not had a letter from the rheumatolgist. He will follow up on......

I had a good appointment with my doctor today. I was disappointed (as was he) t...

IdasMum

•8 years ago

1 Reply

Lower back pain. Not PMR?

Hi I haven't posted on here for ages but am confused as to the cause of fairly severe lower back pain. Had X-ray and bone density scan. X-ray showed normal...

Hi I haven't posted on here for ages but am confused as to the cause of fairly s...

wendyanne49

•8 years ago

6 Replies

last two blogs attached... I'm failing on the technology front!!

The dinner is in the Dog... July 8th I went out for just a couple of hours, both boys were in and came home to find the dog in a food coma and 99% of an entire...

The dinner is in the Dog... July 8th I went out for just a couple of hours, both...

Anne-NRAS

•8 years ago

8 Replies

Stiffness n aches in hands when waking up

I was diagnosed with PMR last August,was on prefer, started with 20mg n reduced to 2.50 n June 1st I am off pred. So far just slight aches, but my hands are...

I was diagnosed with PMR last August,was on prefer, started with 20mg n reduced ...

987460

•8 years ago

9 Replies

the dinner is in the dog.. PMR &* other stuff

https://www.tumblr.com/blog/gilbertsonsteroids have a great weekend everyone x

Anne-NRAS

•8 years ago

4 Replies

Not entitled to Employment and support allowance !

I have been informed that I am not entitled to Employment and support allowance because I have not paid enough National Insurance Contributions. They take into...

I have been informed that I am not entitled to Employment and support allowance ...

jules1955

•8 years ago

6 Replies

CBD oil

After reading about this on this site I have ordered a bottle of this oil. Can anyone tell me firstly how to use it and secondly has anyone had experience of...

After reading about this on this site I have ordered a bottle of this oil. Can ...

Ida-June128

•8 years ago

12 Replies

Life in the slow lane of PMR

Hi I'm David contracted PMR 20 months ago (Diag.Nov 2014) Found PMRGAC uk two months ago. Attended the Annual AGM, now a member and our local group in...

Hi I'm David contracted PMR 20 months ago (Diag.Nov 2014) Found PMRGAC uk two mo...

DavidMF

•8 years ago

2 Replies

Thank you to DorsetLady, polkadotcom, and markbenjamin57 for replying to my post so late last night. I am feeling !!!!!!!!!???

I have only very recently retired and my professional background is as a nurse but for the past 30 years I have worked as a health visitor so my clinical...

I have only very recently retired and my professional background is as a nurse b...

Judyliz

•8 years ago

9 Replies

I fear I might have made a mistake with yo-going dose at a very early stage of treatment and would value your opinion.

I was given the diagnosis of PMR by a rheumatologist at the beginning of June and started on Prednisolone with the following tapering programme on the 7th...

I was given the diagnosis of PMR by a rheumatologist at the beginning of June an...

Judyliz

•8 years ago

17 Replies

7 months

Hi there, it is 7 months since being diagnosed with PMR. I have been waiting for over 2 months for Rheumatologist appointment which is now next week. I am...

Hi there, it is 7 months since being diagnosed with PMR. I have been waiting for...

jules1955

•8 years ago

12 Replies

Myofascial Pain

I have seen this term in a number of replies about unexplained pain. Even before my PMR diagnosis,five years ago, I had pain in the lower back, especially when...

I have seen this term in a number of replies about unexplained pain. Even before...

Annodomini

•8 years ago

24 Replies

Pmrgca meeting Needham market. East Anglia region.

Hi. I had really hoped to be at the above meeting tomorrow, especially as I have just had an emergency appt with rheumatoid doctors. But, one of my dogs...

Hi. I had really hoped to be at the above meeting tomorrow, especially as I ha...

annie_marie

•8 years ago

1 Reply

Reducing Meds

Hi I posted about my doctor lowering my prednisolone to 10 from 15mg in 2 weeks. After reading all your remarks, which were invaluable, I told my doctor I...

Hi I posted about my doctor lowering my prednisolone to 10 from 15mg in 2 weeks....

Riversnan

•8 years ago

11 Replies

Oh oh oh I'm on fire - day 8

I have had to move my blog to tumblr.. the other site kept crashing! http://gilbertsonsteroids.tumblr.com/

I have had to move my blog to tumblr.. the other site kept crashing! http://gil...

Anne-NRAS

•8 years ago

15 Replies

sleep

At what level of Pred did you have to reach before your sleep pattern return to normal? By normal that you were getting enough sleep to function throughout...

At what level of Pred did you have to reach before your sleep pattern return to...

enen

•8 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2016

Eye problems hope my post might help some one.

Stuck In Greece with PMR

GCA and weak legs

Phone call from the Doctor.

Cataract surgery on large dose of prednisone

GCA and use of actemra iv

The weekend, fatigue and stuffing my face!

Alternative therapy

PMR and diabetes

Is this a relapse?

Has anyone had back surgery?

Any ideas?

PMR and GCA

An update on my condition

Good follow up with my doctor today.

Lower back pain. Not PMR?

last two blogs attached... I'm failing on the technology front!!

Stiffness n aches in hands when waking up

the dinner is in the dog.. PMR &* other stuff

Not entitled to Employment and support allowance !

CBD oil

Life in the slow lane of PMR

Thank you to DorsetLady, polkadotcom, and markbenjamin57 for replying to my post so late last night. I am feeling !!!!!!!!!???

I fear I might have made a mistake with yo-going dose at a very early stage of treatment and would value your opinion.

7 months

Myofascial Pain

Pmrgca meeting Needham market. East Anglia region.

Reducing Meds

Oh oh oh I'm on fire - day 8

sleep

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive