Hi there, it is 7 months since being diagnosed with PMR. I have been waiting for over 2 months for Rheumatologist appointment which is now next week. I am down to 9mg of Pred (3 weeks in) from starting at 15mg but am overwhelmingly tired and arms are achy and heavy. I have had a stich like pain in my left side for a few months and have had an X-ray where nothing showed, so now booked for ultra sound at the end of this month. The pain is not so bad now, but at its worst was like muscle spasms inside my body, which took my breath away and it sometimes moves to my ribs at the back. I worry what this could be ? have I damaged an organ with the medication I am taking ? I have stopped taking AA and Omeprazole. I have Osteoarthritis in my lower spine which never troubled me that much before PMR but since reducing from 12.5mg Pred I am in constant pain and I find it very hard to walk any distance and have pain in buttocks and hips.I have taken Thyroxine since in my 40's (now 61) and Lisinopril for BP. I have been off work for 7 Months and had a very active job in a supermarket, 6am starts moving and unloading plants and flowers, sometimes doing 9 hour shifts, on my feet all the time. I just cant imagine doing that now, I feel I have aged 10 years in a few months !! I am hoping the Rheumatologist can help. I think the worse thing is I look ok and people say you look so well ! Some days are better than others, today is not a good day !!
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