Having a lovely holiday in Cornwall, had a great boat trip down the river, and have managed to get my Preds down to 40 and will try 37 1/2 today. But my legs suddenly get so weak that I could hardly get from the car park to the quay. It really worries me. Getting out of the boat I could not get up from the ground. Assume it is the Pred rather than GCA. Get so worried I could have this weakness for life. There is so little I can do. It's great that I have so little pain but if I cannot walk far it cuts down what you can do. Also, I am guessing that as I have no pain in my knees I am probably walking badly and still doing damage without realising it so I guess as the steroids reduce I will get the old pain back and maybe more. Still, I started out with an ESR of 143 and CRP of 245 which was life threatening so I guess I am doing well!!
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