For several reasons, wont bore you but I am stuck living on a small old boat in Grrece and unable to afford to change the situation.
Five years ago I was struck down with the terrible symptoms of shoulder and buttock pain, not being able to clean my teeth or raise from the loo.
After 4 or 5 months of no diagnosis a nuerologist in Levkas came up with PMR which i had never heard of. 30 mg of medrol initially and then pred "I was cured", I have been trying the reduction for 4 years and every time I et down to 10 mg I am immobile.
However last december i tore a calf muscle and since then the symptoms are out of control.
Currently I am on 20 mg Pred daily and 15 mg Methotrexate once per week as prescribed by a Rhumo professor here but the symptoms wont stop..
Now I am worried because the pain has always gone with increased pred before.
The only way i can function if necessary is to take 100 mg Volteren tablet the night before, that will give me reasonable relief for a day.
Has anyone had similar experiences, as an aside I have recently acquired Tinnitus and a rushing pulsating lightheadedness when rising after being seated for a while.