I was diagnosed with PMR when I became ill on a cruise in April. My pointers for inflamation were high and I was put on 20mg of Prednislone. The pains went away but I had such a bad reaction to the steroids that my GP took me down after a week to 15. Most people told me it was too much of a drop and I went back up again to no avail. Before the Pred I had intense pain but nothing else. With the Pred I still have the pains but not as severe. My hands are useless I keep dropping things....they are tingly and numb. I am so breathless...it is frightening...I have had a chest xray which was clear. I am having an ECG next week to make sure my heart is working OK. I had a sore mouth a few years ago and gastritis which were auto immune. The sore mouth is back and my gastritis has returned with a vengeance. I feel as if I have the flu and have a constant tension headache. I cannot sleep and am so exhausted I feel I cannot cope. My GP has arranged a head scan and a visit to a neurologist.
I saw a rheumatologist privately on Monday. He says I need to have more blood tests to rule out other conditions but did listen to me when I suggested that I was having a very bad reaction to the steroids. He suggested a steroid injection and me coming off the steroid pills. When I mentioned about my adrenal glands not functioning and would I not have to reduce slowly he said I should be Ok as I had not been on the medication for more than 3 months. Has anyone else had this injection?