Any experiences on the following - much appreciated in advance.
Reducing hydrocortisone a fraction further as requested by Rheumy from 15mg (equivalent to 3 mg Pred) down to 12.50mg Hydrocort which = 2.5 Pred. This is my third attempt.
Less than 2 days into taper breathlessness appeared again (a feature on my PMR journey of 18 months +) but this time upon waking around 7am & with CPAP machine still doing its job. Never experienced this before other than note when trying to take small step in reducing to 12.50mg on other 2 previous occasions.
I have been extremely pale for some weeks & just absolutely far from well but not directly able to pin point per se.
The odd sensation now again of feeling slightly nauseous which ginger settles, slightly dizzy & slightly light sensitive - have had past migraine history, some hemiplegia, now settled since post menopause .
Sought advice GP Wednesday (not a lot of confidence in GP) who noted my pulse was in bi-gemmi with a rate of 44 bpm. When she listened to my chest heart reverted to normal sinus rhythm. GP then took b/p with cuff 180/70 - what a contrast.
When I asked if this could be part of my steroid withdrawal GP could not offer an me answer - said had not seen this before - (GP only has 1 other patient with PMR).
I collected my referral letter to my Cardiologist & note comment that GP wondered if I was experiencing bradycardias & could this be cause for sx p - what ever last 3 letters signify.
Yesterday felt worse with head throb on either side, highly light sensitive & sensed b/p high again - I rang Rheumy late afternoon who wants me to step back up to 15mg & ring Monday. I believe this could add up to being stroke material + over & above what else is going on? I am absolutely washed out today & feel stable so rest is factoring into my day
Importantly to mention I had two basel cell carcinomas diagnosed this week which helped stress me despite my best efforts to go quietly - my body has gone past the point of coping with even the minutest of stress. How on earth can I overcome this please??
Have cancelled surgery for BCC removal next Monday - Cardiologist appointment on same day which is my priority.
As always any thoughts gratefully received.
My kindest regards & special thoughts of you all as always