Hi everyone, I have just had the results of my biopsy for GCA they are saying that there is signs that it has burnt itself out. My doctor & rheumy are saying that if I can get off the steroids gradually and the headaches etc don't come back then it looks like the GCA has gone into remission. My blood results have gone back to just above normal and they were up really high and rising. I have to have my bloods checked every month to make sure they stay in the normal bracket.
Still waiting on the MRI brain scan and eye hospital back to see the rheumy on 20th July
I was diagnosed in December '14 with GCA and PMR initially put on 60mg of steroids which made me feel great for about 6 weeks, then as I was reducing the steroids I also got a lot of the side effects of the steroids as well. Managed to get down to 35mg daily. Went through 8 weeks April and May time feeling the worst I've ever felt and got really depressed as well, loosing any confidence that I was ever going to feel better again.
Then in June just before I had the Biopsy the headaches eased up and I just seemed to gradually start feeling better. Still have no energy, I sit down and fall asleep, but learning to deal with this and let my body decide my pace instead of my mind. I have now been a week on 30mg without any serious headaches and have got some 1 mg preds to wean myself off more slowly.
I am not having so many down days and am looking forward to loosing weight and hoping the GCA really has gone into remission.
Has anyone else had this experience, of GCA burning itself out then going into remission? Am I being optimistic that I am going to be myself again.