After an urgent referral to the Rheumatology dept (which took 9 days to come through) I have been at told that my fever sweating, pain in hips back legs knees and neck are all due to wear and tear to the joints and because my bloods are normal I can't have PMR.
You can have normal markers and still have it I replied.
I was then told that it was extremely Rare for that to happen.
What about the GCA I said which started with excruciating head and temple pain, and my ESR/CRP readings were through the roof and then returned to normal within hours of starting high dose steroids and symptoms dramatically improved.
I don,t have that either apparently as my. Temple and head painsi are caused by referred neck pain.?
I have been instructed to reduce my steroids from 20 down to zero in three months starting at reducing 2.5 mg every two weeks until I get down to 10 mg , that's a reduction of 10 mg in a month with the aim to reducing the remaining 10 mg over the next two months to zero. I am feeling extremely confused!!!