Four years ago I was diagnosed with PMR with an ESR of 20. All settled with steroids, which were tailed off by two years.
Earlier this year I had similar, but more severe symptoms, which responded within a few days to 15mg prednisolone, but my ESR and CRP were normal. Last week I saw a rheumatologist and had more blood tests and x-rays. I see her again on 26th July. I am allowed to reduce my steroids myself.
When I decreased to 10mg the pain returned, and I was allowed to increase it to 12.5mg, then 15mg, but I still have mild pain. However, I am sure that the steroids are worsening my depression. I saw my GP yesterday and have reduced to 12.5mg, and hope to reduce to 10mg in 1-2 weeks.
Has anyone else experienced this? Do you think it is PMR? The only alternative I can think of is fibromyalgia. Unfortunately I have very little response to analgesics.