Common Bile Duct

[barotacnuevo]

Hello, everyone. I had my Ultrasound last week, My CBD diameter is prominent

measuring 12.1 cm. Is this finding worrying?

Also my weight is 50 kilos taking 250mg of Urso 3 times a day equivalent to 750 mg. for so many years, my specialist reduced my Urso to 500mg a day, told me my liver is ok. Is 500 enough for my weight? Thanks for any opinion, suggestion. Take care, be well.

From,

Barotac Nuevo

[4pjx__]

Hi, I have had a similar issue. A few years ago my doctor was worried my bile duct was expanding too much so they did an ultrasound down the throat kind of thing and they said that while it was expanded it was not all that bad. I think they said it was a nine but I was okay. I has had numerous ultrasounds since (just the regular ones) and it sometimes they say it’s an 8, once they said it’s a 7 which is normalish so, I am not too sure. I thought I should have gotten a few brownie points for that because it was better but nobody said a word about it. So, if they are really worried about it they can go in and take a look and put a stint in if they need too. I don’t know if bile ducts fluctuate or what. I have not heard anyone address that issue.

Pam

[barotacnuevo in reply to 4pjx__]

Hi, your reply has given me comfort although fear and anxiety is taking over me. I searched and learned that the normal CBD measures 11mm and mine is 12.1 cm. which is 121mm. It's so difficult to get an appointment with my gastro, every 6 months. but opinions in this group is really comforting. Always trying to be positive and praying for a good life ahead of us.

Hugs from Downunder.

Barotac Nuevo

[DebatDG9]

Hi

For PBC 750mg of Urso looks like correct dose for body weight of 50kg.

In Prof Jones recent book he suggests taking all Urso at bedtime. I recently saw a Polish consultant and she was surprised that here in UK the dosage is split. They always prescribe it taken all at once. I think it is because originally Urso was developed as a treatment for gall stones not PBC.

[Candy12]

Not sure if my experience is much help but last year mine was seen to be enlarged but I don’t know the measurements. However, it was larger than previously measured. My consultant wasn’t that concerned but thought it might have been a gall stone blocking the duct so did follow-up MRI .

Which showed it was normal, I questioned it as you do and she said sometimes the angle of the ultrasound probe can skew the result and that having the pictures and measurements from MRI is more accurate. Hopefully they offered you a follow-up to have a better look, if you can’t call to speak to your gastro team, have a word with your primary care doctor they will be able to help with follow-up if they think it’s necessary.

[butterflyEi]

The PBC Foundation have a very useful helpline, if you email them they can always talk to you via WhatsApp. If you are not already a member it is free to join.

The usual weight to dose is printed on the Patient Information Leaflet (PIL) and will, I believe, show a range of 13-16 mgs per kilo. The PIL in my next box of URSO shows a body weight between 47-62 kilos is 3X250mg capsules a day to be spread across the day for the first three months thereinafter to be taken once a day in the evening.

The PBC Foundation produced a weight to dose visual calculator. Here is the link

pbcfoundation.org.uk/wp-con...

After the initial 3 months while my body adjusted to taking URSO 3 times a day I was able to take all my medication at the same time. For me I like to take it with my evening meal to avoid the URSO repeating on me.

I have no experience of CBD to share but I hope your primary carer can discuss this with you to reduce your concerns.