"ok really or the standard ok?"
This is part of a messenger chat I had a week or so ago with a good friend who also has PBC.
In thinking of what I wanted my 'Thursday's Thoughts' to be, I thought how often we just say "ok" when someone asks how we are. Such a simple question but I really doubt it ever gets a truthful answer.
Isn't it easier to just say "I'm ok"? Do they really want to know how we are? I am thankful some of my real friends do care how I am. But.... why don't we tell them how we are when we are casually asked this question?
For some, they may not even know we are 'sick' or have a liver disease. Who we choose to tell is a very personal decision. Would they really understand what PBC is if I told them? How would I even begin to tell them I was up night itching so badly that I was bleeding - and crying.
How could we tell people that today just getting dressed was a major accomplishment due to the extreme fatigue we have.
We are so used to saying "I'm ok" that we don't even think to tell them the truth. Having a support group like this one is somewhere that this question will be answered truthfully and often get the support and understanding we otherwise wouldn't. We all do 'get it' here. When we aren't 'ok', it's ok...... we don't have to be every single day. I hope everyone feels this is a place where when the question is asked and expecting a truthful answer, that they get it. It's 'ok' to vent here anytime. We all understand.
PBC 
Aching 
More information on diagnosis trickling in....
