pbc and statins

[mel16]

I have been diagnosed with pbc for the past 12 years and taking ursi. Alp slightly above normal but below 200. Was put on statins for high cholesterol but these brought on a weird itch so stopped taking statins. I also take 20mg pantoprazole daily for reflux, which I can’t do without. My ferritin is low at 21. Just wanted to know if people take statins/ppi with pbc and how they affect you,

[butterflyEi]

I have been taking Simvastatin 10mg for a very long time fortunately with no adverse reaction. I no longer use a PPI.

Has your itch stopped since you no longer take the statin? If not it may have been a coincidence as there is an "itch" associated with PBC.

[mel16 in reply to butterflyEi]

thx for reply. How did you manage coming off the ppi as every time I try I get such acid in my throat

[mel16 in reply to mel16]

also could I ask if you have lp too

[butterflyEi in reply to mel16]

The statin was first prescribed some 20 odd years ago before my PBC diagnosis as there is heart disease in my family history.

[gwillistexas in reply to butterflyEi]

Same in my family. Take no chances.

[butterflyEi in reply to mel16]

I lost some weight, added kefir and plain yoghurt to my diet. I take a probiotic to increase my good gut bacteria and when necessary use Gaviscon double action tablets.

[mel16 in reply to butterflyEi]

did u have acid reflux

Would do love to come off ppi

Thank you for responding to me. Also do you have lp too?

[butterflyEi in reply to mel16]

Can you tell me what lp is please?

[mel16 in reply to butterflyEi]

it’s an autoimmune skin condition. Thanks for responding

[butterflyEi in reply to mel16]

I wondered if you refer to Lichen Planus, I have LPP, lichen planopilaris which I believe is related to Lichen Planus and it is another auto immune condition of the skin but on the scalp.

[mel16 in reply to butterflyEi]

so many different autoimmune conditions

[gwillistexas]

I was taking a statin a few years before being diagnosed with PBC. I’ve had no side effects from them.

[mel16 in reply to gwillistexas]

thank you

[kingsnorth]

Hi Mel l was diagnosed with PBC in 2018 and 2 years ago with Rosuvastatin due to moderate plaque in my arteries the statins were prescribed as a preventative measure even though my cholesterol wasn’t high. I have been fine and my PBC blood results are still with normal range. The first statin prescribed Atorvastatin caused leg crams so my gp changed it to a different one hence Rosuvastatin. I don’t have reflux anymore as l have changed what l eat and for me it worked. Good luck

[mel16 in reply to kingsnorth]

thank you for the reply

[SimbaTutor]

I took pravastatin for years, but doc changed me to rosuvastatin. No problems with either med. I've just found The Acid Watcher Diet by Dr. Jonathan Aviv at my library. Interesting read as I found many of my throat symptoms (trouble singing, continuous post nasal drip, hoarseness, feeling of lump in throat) I thought unrelated were actually due to acid reflux. My gastro had diagnosed GERD at last appointment. I'm trying the healing diet he suggests; so far so good. I seldom took PPI since many of them make lupus symptoms worse and I don't need that! I hope to sing again without sounding like a teen boy in voice change. Good luck.

[mel16 in reply to SimbaTutor]

thank you

[CeeCee101]

My reflux/heartburn/nasal congestion all disappeared when I went gluten free. Took a few weeks but all gone now!

[mel16 in reply to CeeCee101]

I wish I could be strict going on a special diet

Thanks for reply

[ninjagirlwebb]

I am on Atorvastatin. It works for me.

[mel16 in reply to ninjagirlwebb]

thank you

[Couly1960]

I was put on a statin and it caused bad liver pain so I went off it and got a fibroscan and it showed F2 fibrosis. I believe the statin caused this!

[mel16 in reply to Couly1960]

Thank u fir the reply. My last test for cholesterol had gone down so my dr suggested holding off from taking statins

[Jeremy72]

I was diagnosed some 24 years ago with PBC and I had a high cholesterol my consultant prescribed Fenofibrate with good results.

I understood that people with liver disease cannot take statins or not recommended. .?

[ninjagirlwebb in reply to Jeremy72]

My liver specialist told me statins are safe to take. A lot of us with pbc and high cholesterol are on statins.

[Lezley23 in reply to ninjagirlwebb]

I’m on statins.