update

[gwillistexas]

just wanted to share the latest. You remember when I last posted I was going to Dallas for an mri/mre after a different hepatologist did a fibroscan and said stage 4 fibrosis. My regular hepatologist was in disagreement and sent me to Dallas. Radiology report said possible early cirrhosis. Scared me to death. So he then scheduled a biopsy which I had June 26th. I got my pathology report today. Stage “1” fibrosis. So I suppose Ocaliva has worked wonders in my case. Stage 2 fibrosis at diagnosis in 2017 so it has decreased a little.

happy to say I’m at ease now. I’ll definitely stick with my regular hepatologist.

[Ktltel]

Wonderful news!!!! So happy to hear it. Take a deep breath and keep on truckin'. 🙆‍♀️stella❤️

[gwillistexas in reply to Ktltel]

yes ma’am! 🥰

[gwillistexas in reply to Ktltel]

Stella, are you doing ok?

[Ktltel in reply to gwillistexas]

I am. Thank you. I developed a small incision site hernia on my hysterectomy scar. Ugh! I may have to have it repaired in December or early next year. I'm trying to lose weight slowly and safely before surgery. Feeling pretty good. My numbers are stable. I had a bladder infection a while back that sent my numbers off track but, that's all fixed and overwith. I'm doing pretty good.👍🏻❤️

[gwillistexas in reply to Ktltel]

I remember you posting about the surgery. Hopefully you can get everything where you want it before surgery. You have a strong determination and you’ll get there😊. Glad your numbers are stable.

[Ktltel in reply to gwillistexas]

I edited my comment. A bladder infection caused some health turmoil back in March- May. Lots of tests and labs. Another CT. Everything better now. 🥰

[gwillistexas in reply to Ktltel]

oh my…painful. Hope that stays under control.

[Ktltel in reply to gwillistexas]

Thank you. Yea, antibiotics and clean eating. I've lost 40 lbs. Now my surgeon says I may not need to have the surgery after all. It's a small hernia and I hope to keep it that way. I just have to be careful about not lifting anything! I'm 64! I shouldn't be lifting stuff anyway. Still trying to eat right and doing some walking everyday. 🚶‍♀️❤️

[gwillistexas in reply to Ktltel]

That’s great! I’ll gladly take about 20 of the 40 you lost, lol! I eat everything in my path and gain nothing. It’s a terrible place to be. In fact I’ve been told that due to me being so thin I’m really not a good candidate for fibroscans because the probe can pick up rib vibrations which throws the reading off. I don’t have much faith in fibroscan after all this and the mre isn’t much better in my case I’ll settle fir biopsies and get true results

[Ktltel in reply to gwillistexas]

Awe. I understand. I'm so happy about your news. At least you found out what's going on and where you're at. 👏🏻👏🏻👏🏻👏🏻👏🏻

[gwillistexas in reply to Ktltel]

Thank you. You take care and we’ll chat another time. 🥰

[butterflyEi]

gwillistexas and Ktltel

pleased to read your thread, glad things are working out for you both.

[gwillistexas in reply to butterflyEi]

Thank you! Hope you’re doing well.

[Ancolie]

Oh, very happy for you gwillistexas ! That is good news. Life is good 🌞

[gwillistexas in reply to Ancolie]

Yes! Especially when you were told by another hep you had cirrhosis. My hepatologist is sending his report to the other one do he can see how wrong he was.

[Ancolie]

Well done. Not always easy to find the good one. It took me 5 years to get the right one. The other one was saying that it was in my head and I was crying when I got out of his office because I new something was going wrong with me. I finally got to see the good hepatologist, got score of 9 for my fibroscan 640 AMA positive and also had fatty liver. With good treatement and good dose of ursodiol, 500mg 3 times a day, this year fibroscan gave the result of no more scars and no more fat on the liver ! She was happy and me also 😊.

[gwillistexas in reply to Ancolie]

that’s great! I’ve been seeing my first hepatologist for almost 3 years. The only reason I saw the other one was just a second opinion. I learned my lesson. . My first hepatologist is actually the best. My drs all say he’s the smartest they’ve ever known. We learn a lot along the way don’t we.

[Ancolie]

I agree ! 😊

[lovesoccer]

Wonderful news. So happy for you!

[gwillistexas in reply to lovesoccer]

I appreciate that. We all know this disease is unpredictable and things can change quick. We have to hang in there and fight it the best we can. Take care😊

[liver-bird]

So glad to hear your good news. Keep well. Big hug

[gwillistexas in reply to liver-bird]

Thank You!😊