New Itch Survey

[PBCRobert]

Just to let you all know there is a live survey on the App asking about your itch experience.

We would love to hear your perspective. I am sure you all know already but the App is making a positive impact, not only to many patients, but also to care from clinicians.

Already, the data we have published has helped drive a UK-wide audit of PBC care, which will play an important part in improving PBC care. So thank you for your input so far. Please make sure your voice is heard and do join us in using the patient experience to improve the patient experience.

[Sydgal]

Done, Thankyou for the amazing work you and the Foundation is doing 👍 much appreciate it.

[butterflyEi]

done! I agree with what @Sydgal says

[Gioielli]

I have had PBC for fifteen years. I haven’t eaten meat for 23 years. I have never experienced the ‘itch’.

[Wocket in reply to Gioielli]

I’m a vegetarian too but I’m itching like hell this morning 😭

[gwillistexas in reply to Gioielli]

I have no diet restrictions and have never itched.

[Stub007]

I itch most of the time, especially on my back, and at night.

[PBCRobert Partner]

Thank you for sharing in here. It ia even more important you share your experience in the survey.

We would be so gratwful.

[PBCRobert Partner]

Remember, even if you don’t itch, you can tell us in the survey. That will help gain a more accurate % of how many oatients do or don’t itxh.

Thank you.