The message I just received from my hep is this…benzfibrate is being studied with ocaliva. He will let me know when the trial is available. 😊
Benzfibrate: The message I just received from... - PBC Foundation
Now that's great news! I hope you're able to do that one!
That’s really good news, fingers crossed 🤞
On Octavia for a year and made no difference at all to my levels. Then went on Bezofibrate and within a month they were down to normal for the first time in 10 years.
I’m sorry to hear that. Within 3 months my Alk went from 247 to 160. It steadily came down and went to 97. It eventually went back to 113 , then the last year it started back up and was 160 last check.
Wonderful. Hope you don't have long to wait.
Hope it works out for you Gail
I have been on Ursodexacholic acid for 18 years my readings didn’t alter much and I experienced my digestion not being able to handle numerous foods. In addition the misery of diahorrea terribly embarrassing. 2 years ago Bezafibrate was added to my medication my diet improved I now have to watch I do not become constipated! Now my liver enzyme readings are normal and I don’t need to see my consultant until a review in 4 years! unless I develop a problem. Good luck I hope it works out for you.
That is wonderful to hear. Aside from your levels being good, do you know if it has slowed progression?