Benzfibrate

[gwillistexas]

The message I just received from my hep is this…benzfibrate is being studied with ocaliva. He will let me know when the trial is available. 😊

[4pjx__]

Now that's great news! I hope you're able to do that one!

[gwillistexas in reply to 4pjx__]

Yes it is. I’ve already been researching it, lol!

[Candy12]

That’s really good news, fingers crossed 🤞

[gwillistexas in reply to Candy12]

Yes ma’am. Thank you!

[Gioielli5]

On Octavia for a year and made no difference at all to my levels. Then went on Bezofibrate and within a month they were down to normal for the first time in 10 years.

[gwillistexas in reply to Gioielli5]

I’m sorry to hear that. Within 3 months my Alk went from 247 to 160. It steadily came down and went to 97. It eventually went back to 113 , then the last year it started back up and was 160 last check.

[gwillistexas in reply to Gioielli5]

Your experience is very encouraging 😊

[Hidden]

Great news!

[butterflyEi]

Wonderful. Hope you don't have long to wait.

[gwillistexas in reply to butterflyEi]

Me too. Thanks!

[liver-bird]

Hope it works out for you Gail

[gwillistexas in reply to liver-bird]

Yes, I need it to. Thank you.

[Eileen-Emily]

I have been on Ursodexacholic acid for 18 years my readings didn’t alter much and I experienced my digestion not being able to handle numerous foods. In addition the misery of diahorrea terribly embarrassing. 2 years ago Bezafibrate was added to my medication my diet improved I now have to watch I do not become constipated! Now my liver enzyme readings are normal and I don’t need to see my consultant until a review in 4 years! unless I develop a problem. Good luck I hope it works out for you.

[gwillistexas in reply to Eileen-Emily]

That is wonderful to hear. Aside from your levels being good, do you know if it has slowed progression?

[gwillistexas in reply to Eileen-Emily]

All my levels are normal including bilirubin. My hep did a lab to try and determine why my Alk Phos was going back up. Result was normal and it isn’t from my liver. 🤷‍♀️