God hates me

Now my AST is elevating and my alt is dropping. Different labs have different titrs

I get it

But why is my ast now elivating

Aih is going to kill me

[Newengland01]

When your azithroprine needs to be increased levels do go up. It's trial and error until they find the right mg., that works for you. Also, the doctors don't always use the lab ranges for your ast and alt. They interrupt the results differently. Stress causes AIH to flare. So you really need to be calm. It's not going to be perfect labs until azithroprine is adjusted to the mg you need. Sometimes it takes months to see the azithroprine working.

[Hidden in reply to Newengland01]

My enzymes was in perfect range for a month My alt was 116 at the Mayo. Their titre is a little higher than my primary dr lab. Now my alt is 87 and ast is 44. My alk is still in range but elevating. That is 77. I just give up. It's to much stress and Dr apt and let down after let down. What is there to fight for anyway. At the end of the journey will I be crippled with pain and disease because I have to be on my last breath to be elevable for a liver transplant.

[ILik3Pizza in reply to Hidden]

Actually, the liver transplant board doesn't care about your ALT or your AST. Your eligibility is based on your "MELD" score (Model for End-Stage Liver Disease). They check your bilirubin, prothrombin time and creatinine. Try to keep your stress in check -- it doesn't help to fret!

[4pjx__]

I don't know why you have those results, but don't give up. You have to kick that disease in the face!. And also...what DORA says. You have given us a lot of kind words and I believe that is God's work right there. If he hated you you would be doing the Devils work. 😉

Pam

[kristieerhodes]

As the others said, God loves you! Satan is trying to sneak in and we cannot let him in to affect your thinking. He thinks that if he tempts you with negative thoughts enough, you will eventually break down. Stay positive and give God your worries. I know it is frustrating when dealing with this stuff, especially med doses to get it right. But just remember if you think negative, you will feel worse, at least that is how it is with me. Lots of love and prayers for you from Arkansas.

[nan1012 in reply to kristieerhodes]

Oh my gosh- I'm in Arkansas, too, on the eastern side near Memphis, TN. Where do you go to the doctor for PBC? God bless!

[kristieerhodes in reply to nan1012]

I go to the Little Rock VA. It's so neat to find someone else in my state; even though I don't want anyone else to have to deal with this crap.

[nan1012 in reply to kristieerhodes]

I know what you mean- I've been to Dr Dramoff at UAMS in the past, but my regular doctor is in Memphis- Dr Satapathey - he's at the Methodist Transplant Center and with UT. He started a support group for PBC patients in the Memphis/Midsouth area that meets quarterly.

God bless you!

[Shulsey]

I agree with everyone who says to stay positive & put it in God's hands. I feel that there is a purpose for all we're going through. God chooses his most strong soldiers for the hardest trials. He has to believe that each & every one of us is stronger than we know or we wouldn't have been chosen to be here. We are all a part of his plan❣️

P.S.

I like to think that his plan is to find a cure & how can you find a cure without all of us😊. I pray everyday that we're closer to that cure because I have two young girls who could get this through genetics, they're 18 & 8.

[Gleision]

Just remember, you have come through this far both positive and helping others. Don't allow a hiccup, that's what it is, to make you feel down. We all have to fight this disease even when we don't want to or however we feel. Sending Hugs x from Dylan Thomas country. Swansea, Wales.

I know without my Faith, I don't know how I would have gotten through many things.We are all here for you. X

[Newengland01]

All I can tell you is I've been down the road you are on! I believe they have to get you on the right dose of azithroprine and you will start seeing good results. My ast and alt were in the thousands in the beginning and after starting prednisone they came down to the hundreds and when I started azithroprine they went evening lower, but when they started to go up here and there, that's when my azithroprine dose got raised until my dr found the dose for me. And I've been on that dose for 4 1/2 yrs. But it took 6 months to get everything on th right track. AIH goes into remission with the right doses of meds but you may still experience symptoms now and then. Azithroprine suppresses your immune system so you don't cause damage to your liver but it does not take the symptoms of the disease away! I get joint pain a lot but it comes and goes. I spent 2 yrs trying to figure out where this came from and why me when no liver issues ran in my family or any autoimmune disease. I took pics of my eyes for over a year and couldn't pass a mirror in a store or my car without checking to see if my eyes were yellow. When I first went to the hospital I was in liver failure per the definition and admitted to the hospital. I walked around for weeks with jaundice and not even my kids saw it because I usually stay tan all year around. I worried constantly and finally just realized I was not going to get the answers I was looking for. I prayed every night and still do. I thank god and all the saints I prayed to for helping and healing me. If it weren't for my faith I would have had no one! Of course, I had my kids and sister but they got tired of listening. I didn't know what me was because when I thought I was healthy I wasn't. I'm back to the real me now and I get labs every 6 months and an ultrasound to make sure everything is ok, and I still get stressed when it's time for those tests. But it all works out. You need to forget you have AIH and go about your daily routine and enjoy yourself and have fun. Sometimes my mind will run away with me but I just block it out. Sometimes I get a little pinch pain on my right side and start to think but it goes away and I move on. They have a new drug out that can heal scarring in the liver but it is only available to those with fatty liver disease because that's where these drug companies can make money. But soon it will be available for other liver conditions. God loves you and this bump in the road will make you stronger. Have faith. Remember there are a lot of ppl on this site with support for you. I'm here anytime.