Itch relief : What are you guys using to... - PBC Foundation

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Itch relief

Lookforward profile image
9 Replies

What are you guys using to manage itching

Especially at night it feels like I'm being eaten alive from inside out !

All usual stuff tried - cider vinegar , lots of aveeno cream , regularly shower at night , cold room , no duvet etc - antihistamine

Any suggestions welcome

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9 Replies
butterflyEi profile image
butterflyEi

Hi Lookforward

In the past I have used Cetirizine two tablets twice a day and it did control the itching for a while but the anti histamine route stopped working. I am now prescribed colestyramine in the guise of Questran Light (not very nice to take) and Rifampicin 600mgs a day split over two doses. This has helped to dull the itch but has not removed it completely. At least I can function now.

I also use a 2%menthol cream as a top up - it is a topical application which is only temporary and when all else fails out comes the ice cubes from the freezer!

:-)

Lookforward profile image
Lookforward in reply tobutterflyEi

Thank you butterfly EI for this advise .. I will discuss the meds with my gp

Yes I also use ice sheets to lie on .. it is helpful

tess303 profile image
tess303 in reply tobutterflyEi

Hi,

I also wanted to take Rifampicin for the itch but my doctor told me that I can only take it for not more then 2 weeks because it will damage my liver :(

cfsummerford72 profile image
cfsummerford72

Questran lite and hydroxyzine

Lookforward profile image
Lookforward

Thank you . Got my doc to prescribe so hoping it will ease the itch

butterflyEi profile image
butterflyEi in reply toLookforward

Hi Lookforward

Just seen you have asked doctor to prescribe so just wanted to say in case you have not seen any information colestyramine (Questran or Questran Light) takes quite a while to get into the system for me it was about 6-8 weeks so do persevere and also if I do not offend you will see white specks in your stool. I found the best way to get the questran down is to use a thickish juice, cannot stomach it in water. Stick with it though and I hope it will help to relieve some of your discomfort.

best wishes

Lookforward profile image
Lookforward in reply tobutterflyEi

Thank you for your helpful advice .. am taking question now and hopefully it will make a difference soon

It's so great to have someone who has lived the experience to get valuable advice from

Keep well you

ewagstrom profile image
ewagstrom

So sorry for you, friend. I have idiopathic urticaria which I control with 10mg Zyrtec in the morning and in the evening. I've just started a bit of itching that is different and I believe due to the PBC, but I think it is not too bad yet because of the Zyrtec. My allergist prescribed Zyzal in addition to the Zyrtec which helped. However, I have to say that ice truly does a great job.

Lookforward profile image
Lookforward

Thank you and all others for such valuable advice ..

Have started taking question now and am feeling positive .. also I have been able to email my consultant who responded quickly and agreed re questran so all is good ..

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