PBC Foundation
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Living while waiting for the other shoe to drop!

Diagnosed 6 months ago after 7 years of "unusual" liver tests. My primary ordered the AMA test on the advice of his partner but admitted that I'd have to see someone else if it came back positive since he had no idea what it was! So much blood work, ultrasounds, endoscope, and biopsy resulted in the diagnosis of stage 4 cirrhosis, fatty liver, PBC, GERD, and gastritis. For the first couple of months I read everything I could about this disease; the more I read the more obsessed I became. One prognosis was worse than the next. And then one day I realized that I was wasting all these beautiful asymptotic days by worrying! I decided to use whatever energy I have enjoying what I can. However, in the back of my mind I know that things could take a very ugly turn. I would really like a "timeline" -- how long can this liver hold out when it's already irreversibly damaged! Urso has helped with digestive issues, but the fatigue is like a wall I run into whenever I try to extend activities. Thanks for "listening"!

1 Reply

Private message me your email address. I'd like to share something with you. OK. Please don't give up hope.

Stell ❤


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