Hi just wondered if anyone else out there is taking tamoxifen for breast cancer?
Has it caused you any problems with your liver etc. I have pbc and SOD and sjorgins and breast cancer š¬
Hi just wondered if anyone else out there is taking tamoxifen for breast cancer?
Has it caused you any problems with your liver etc. I have pbc and SOD and sjorgins and breast cancer š¬
So sorry aussielouise.....so much to deal with. My heart goes out to you. I have PBC and sjodrens. What do your doctors say about taking tamoxifen an your liver?
Aussielouise, maybe I shouldn't post because I don't have an answer for you. But, I just wanted to say I am so sorry you're dealing with so much. I'm feeling sorry for myself lately and it's ridiculous when so many are dealing with many things at once. Keeping you in my prayers. I hope you get an answer soon. (Hugs for you)
Stella
Same as Ktltel cannot imagine what you are going through. But wish you a speedy recovery. Will keep you in my thoughts and prayers
Hi AussieLouise,
I am so sorry that you are suffering so many health issues. I don't have an answer for you but I certainly feel for you. (My mother is suffering from stage 4 ovarian cancer.) I have been researching cancer treatment on her behalf. I heard that Low Dose Naltrexon and Alphalipoic Acid can help autoimmunity and Cancer. My mother is going thru chemo so she can't take LDN and ALA right now. Otherwise we will try.
Here are two links you might be interested. Do check with your doctor though.
thetruthaboutcancer.com/low...
Another link is on youtube by Doctor Burt Berkson - Low Dose Naltrexone (LDN) prescribing Doctor
Best wishes,
Jane
Aussie...I read a few articles since my last post and they seem to think tamoxifen helps the liver. It looks promising.
Yes. It's a bit confusing because I've seen them too. Only thing is one of the side effects from tamoxifen is liver damage! So very strange. My oncology dr said she is going to monitor closely and if my liver gets worse she will have to rethink. I hate the thought of taking the tamoxifen anyway. It's associated with a long list of side effects. But, like my dr said cancer or side effects!
So I'll just to wait and see I suppose
Hi Aussielouise, I hope you're doing well. Since this post is 2 years old, I'm hoping I can talk with you about how you're doing on Tamoxifen. I was diagnosed with breast cancer and have pbc and sjorgrens also and my oncologist wants me to take Tamoxifen. I have read it causes liver damage also and I don't want my pbc to get worse. Any information you can provide would be helpful.
Hi. Funny I should just see your message as Iām sitting in my oncologist waiting just waiting for my 6 month check up. My Rheumathology dr is quite happy for me to take tamoxifen as so is my liver specialist.
In fact there are old studies which looked at tamoxifen as a cure for pbc! Have a google and see. It has been shown to lower raised lfts apparently and I think it actually did mine.
I have sjorgins too by the way. Seems it goes with pbc quite a lot. I hated starting tamoxifen but really itās not been so back apart from the terrible hot flushes lol. I did stop it for a month and really didnāt notice that I felt any better so Iām putting feeling rough down to the sjorgins and pbc. Actually I think itās the sjorgins that gives me the most problems now. I have terrible painful feet and legs. Fatigue is bad and I feel like Iām 100 some days. Funny when I first heard about it I thought it was āonlyā dry eyes! Itās affecting my throat too and my white blood count. But hey cancer hasnāt returned so I canāt complain. I did have to give up my job which at first I really missed. Now Iām quite happy about it in some ways as thereās more important things I want to save my energy for.
Itās scary to start this journey but Iām two years post cancer diagnosis and fine. Tamoxifen isnāt the scary drug I though it was and my liver is doing well. Donāt have any worries about the tamoxifen, if your doctor thinks itās for you take it! Hope this helps. Good luck with everything.
Hi- I just saw your post. I had breast cancer two years ago and am now having trouble with my liver. I have anti-mitochondrial antibodies and potentially PBC. I think the tamoxifen is causing it.
Your sister did the right thing. I used to be in the medical field before I became too unwell to work. Natural treatments never work for cancer. Iāve seen way too many people just get sicker and sicker from just going natural.
Conventional medicine doesnāt have all the answers but itās the best we have available.
After two years Iām not having any problems with the tamoxifen.
Sorry to hear you have neuropathy from the chemo. I think itās all a balance act. My immune system went crazy after the radiation. I now have a lot of problems too. But I suppose if itās a balance between cancer or radiation Iād do the radiation again. Even though itās enough to give me nightmares.