Good morning all, I am new to this. I do nit use social networking sites at all generally. So if I go on a bit & bore you to bits I apologise in advance. Hopefully I will get the hang of it quickly.
I was diagnosed with PBC in August 2015. I have had all the scans except the Osteoporosis which I am having today at 3pm, had colonoscopy & OGD, & last but not least the & the icing n the cake ' the good old Liver biopsy'. Anyhow, after 1yr & 7mths of taking Ursodeoxycholic I was informed by my specialist that I am not responding to it also the Liver biopsy showed that I have infact already got scarring on my liver.
I am now in panic mode wondering how aggressive this PBC actually is. I was wondering if any of you guys out there are or have experienced the same problem with not responding to the Ursodeoxycholic & what was your solution. I am applying to take part in a clinical trial fir another drug called Obeticholic acid. Would appreciate any feed back.