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[Mrsfancypants]

Scared and very upset and can't accept it

[lynda75]

We are all here to help each other so dont be alone. These feelings are completely natural and we all go through them at different stages of our illnesses. Be gentle with your self and remember its ok not to be okay all the time. But most important is to talk to people and express your worries a problem sharedis a problem halved. Im almost 12 wks after my transplant and slowly getting life back. Stay positive stay strong you are stronger than you realise . Xxx

[Hidden in reply to lynda75]

Lynda75, if you don't mind my asking, I know you said you were diagnosed in 2010. It's only been 7 years and you've already had a transplant? I'm so sorry to hear this! Again if you don't mind my asking, what caused you're having to get a liver transplant??

[Mrsfancypants]

Thank you Lynda keep well xxx

[Fiona_scott889]

Hi Wendy it does get better but there will always be up and down days x stay strong

[Thenoise]

Hey Wendy,

I was only diagnosed December, right on top of Christmas. I felt very much the same. Fast forward 2 months and I'm slowly starting to accept things. Its not easy, I have good days and bad days. Only advice I can give at the moment is to try and keep positive, it'll take a while to get your head round it all, I'm still figuring it out myself. This forum is a massive help. We are all in this together. X

[butterflyEi]

Hi WendyHelena

Sorry to read you have your diagnosis it is a difficult time coming to terms with PBC but one of the best things I read at the early stages (diagnosed 2006) was that you are more likely to die with PBC than because of it.

Join the PBC Foundation through the icon link above. Once in the members section there is a good deal of information. They are also to be found on face book. You will find in the bear facts magazine information about local meetings.

If you are in the USA then PBCers.Org who are also on face book are a good source of information.

I recently came across this group who with the help of Intercept Pharmaceuticals sponsored an evening in Portsmouth with talks on PBC PSC and AIH. They apparently hold meetings in the Bournemouth area and in the Portsmouth area. Albeit that they are not a dedicated PBC charity but as an information source they seemed good.

liver4life.org.uk/

You will find a great bunch of people on this forum, helpful and knowledgeable, without their support I do not know where I would have been.

best wishes

oops! apologies I see you are in the UK.