Liver cancer scare

Since Nov 12 2016 I have been dealing with possibly having liver cancer as well as PBC. I have been working full time until Jan 6th when I was told it looks like I have Cancer. I went off on sick leave. Because I live in Canada and it takes forever for a MRI. I had to wait till Feb 13th. We were going on a sunny holiday so we made the best of it even though the haunting of possibly having cancer was there. Finally the MRI results came and I don't have Cancer. Since being off work I have realized how much I had been struggling with my PBC and working full time. My work has been great and I am staying off to see how I feel ( now that I know I do not have Cancer) I can just see how I am. I have never really accepted or dealt with the fact that I have PBC but I want quality life and not live on my couch after work And weekends. Work was draining me and I had no energy left for anything else. I guess I am looking at not working but I feel a bit guilt However My family is supportive. I had 5 years left till I retired. Does anyone have advice for me?

13 Replies

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  • First. So happy for you and your results having no cancer. What a stressful holiday it must have been.

    If you want some energy back, check out Dr. Burt Berkson videos on YouTube. Conventional medicine can only do so much.

    Lowdosenaltrexone.org

  • Thanks I have been doing Chinese Acupunture. I will also look into what you have recommended

  • Please do. Read all you can about it. I am in the early stages with PBC. My fatigue though was bad. I've been on Low dose naltrexone for 5 weeks now. I literally feel like my old self. I'm on a strict anti inflammatory diet too and I do see a naturopath and I take supplements for my liver from him and take vitamins too. (Mostly D3 and super B complex)

    I can't take URSO. I got pretty sick on it. However, you can take Low dose nalrexone with Ursodiol.

    If you look at the other forums on this site (healthunlocked.com) you will find the Ldnfoundation. Listen to any of their audio broadcasts. Ldn (low dose naltrexone) is very, VERY promising in fighting the battle against auto immune diseases. PBC included.

    Stella

  • Correction-

    I'm sorry, the ldn forum on this site is called Ldn Research Trust

  • Glad you've not got cancer, I'm waiting on MRI result to find out if I have liver cancer, the waiting is the worst , hope I've good news too, I worked full time, then partial retirement =4days, then cut down to 3days, done this gradually over 5years, now I'm finally retiring, at 65, I'm so exhausted now, it's time to enjoy life as best as I can,

    Cutting down work gradually may help you make a final decision on stopping work all together, hope this helps you decide what to do, keep well, xx

  • Thank-you. Hopeful prayers to you regarding your MRI. Positive thoughts sent your way.

    I am thinking of working less just giving myself some time to see how I am feeling. Hope you get good results so you can enjoy retirement.

  • Hi Franky007

    Such good news to read that you are free of cancer but what a stressful time you must have had.

    I am assuming that in Canada you retire around the age of 65. If you cannot retire earlier is there any chance to work part time or is there a work related health benefit that you could apply for?

    Hope you manage to sort something out to your benefit.

    best wishes

  • I am fortunate and can retire in 4 years. Full pension with my work and early retirement. A lot to think about. I am thinking on going part time as I need the health care benefits too.

  • Franky I'm so happy for you that you don't have liver cancer. Congratulations. Do you have a hobby or something that you enjoy doing to keep you busy?

  • Yes I have hobbies but some I can't do so much anymore. However I don't seem to be bored as I don't sleep well at night and then can't get up in the morning.,

  • I have the same problem. I started cake decorating and making cake decorations. I started doing this with my husband before this medical stuff started popping up. This one is the only one that seems to be lingering out there torturing me. But I do list my cakes and either sell them or give them to homeless or toss them. It's a lot of fun and my children get involved. It's always good if you have a hobby that you can make money to help pay for it.

  • Hi

    I can tell you the same story, was really struggling in work for about a year would sleep straight after work and most of weekend had no life so decided to take some time off work. Now a year later realised how bad that time was. So don't feel guilty if you take time of work.

  • Thanks, I have taken care of people at home and work since I was 18. It's hard for me to think of myself so used to being the one who takes care of everyone

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