Pbc/Aih

[janine541]

Does any body have the same!. Redness in face as though you have been burnt. And dizziness.

[chasper]

Yes I have had this for at least 6 years after being diagnosed with pbc aih 7 years ago. Very sensitive to shampoos,soaps and even warm water on face. Never rub but pat your face with towel softly. Also no moisturizer,just water. Dizziness at times and sometimes memory loss but most of time good. Energy levels better in the morning and fizzled about 8pm

[janine541 in reply to chasper]

Aww thank you

[butterflyEi]

HI janine541

I was diagnosed with rosacea, I was very red in the face but I could not say that it looked like I had been burned.

I also suffered with dizziness. After a bit of internet research I came across the Epley manoeuvre which you can find on You Tube and that temporarily seemed to rid me of the dizziness but when it came back I had other symptoms like being unsteady on my feet and strange sensation in my feet and jumping legs - I spoke to the GP who did a blood test and I was found to be vitamin B12 deficient (for me this meant Pernicious Anaemia). I have been having vitamin B12 injections for nearly a year now and feel a lot better.

Perhaps a visit to the doctor might get you a diagnosis.

best wishes

[janine541 in reply to butterflyEi]

Thank you

[Michiganpbc]

Yes I do! I have stage 2 PBC and Sjogrens overlap lupus symptoms I know the Plaquenil can cause sun sensitivity and I do take that everyday I wear sunscreen everyday .