Hi - I had written a post introducing myself the day after I was diagnosed, but I can't find it anywhere, so I'm thinking I must have done it wrong.
Anyway, I'm Rebecca. I'm 41 and a single mom with a 9 yr old boy.
I have had high (flagged HI) liver numbers since 2010 and I brought to three famly dr's attention but no dr. I told did anything about it. I started seeing a new family dr. recently, and he followed through with more testing but couldn't find anything. He referred me to a specialist and she ordered a biopsy. Had my biopsy April 6th and was officially diagnosed April 20th with PBC. It was also queried on the report that I had Autoimmune Hepatitis. More testing is being done for that.
For the first few days I cried a lot, and thought about my life and re organizing my life...but also once I stopped crying, just numb. I haven't begun to accept it or process it yet.
I've since done a lot of research and learned as much as I can. I was put on URSO immediately and I'm taking 1500 mg / day.
I'm scared. I have a follow up appt. June 23rd after more blood tests so my dr. can monitor the progression of the PBC. My liver biopsy staged me at stage 1-2.
I'm hoping to learn a lot from you guys - and to turn to you for support as I try to process this (and beyond)...
(the photo is my family)!