PAIN

[ROBINLORI]

HI ALL, DOES ANYONE SUFFER FROM EXTREME PAIN IN THE LIVER AREA WHEN TAKING A DEEP BREATH? ALSO, DOES IT HURT WHEN YOU SLEEP ON THE OPPOSITE SIDE OF THE LIVER? WHEN I DO THIS IT FEELS LIKE MY LIVER IS FALLING OUT(LOL).

[cazz22]

Hi robin lord.yes I do.some days causes me great discomfort.like some others I stopped wearing a wired bra and use those genie bras.worse at night.feel like something is trying to escape through my ribs.i don't have the typical fatigue/itching of other pbcers just pain in feet legs and liver.gets me down sometimes.theyve discovered nodules/lesions on my liver tho and as I'm writing waiting to hear results as to exactly what they are.my bloods are practically normal now tho never really been high.also developed a weird tyre of fat??that no amount of dieting moves x

[ROBINLORI in reply to cazz22]

I KNOW EXACTLY WHAT YOU'RE SAYING. ALL OF A SUDDEN I HAVE MIDDLE BELLY FAT. NEVER HAD THIS BEFORE. I HAVE A HIGH AMA AND ANA BUT NORMAL LFTS(ALKALINE PHOS A LITTLE HIGH) AND HORRIBLE PAIN UNDER AND BEHIND MY RIBS ON THE RIGHT SIDE BUT THEY DON'T KNOW IF IT'S PBC OR NOT.

[cazz22]

Hi robin lord.have you had a scan?due to slightly high lfts I was initially sent for an ultra sound scan which showed a perfectly functioning liver not even fatty which the radiologist said half the country have but then these nodules were detected.i was sent for ct scan then and told it may be cancer but no tumor was detected.several consultants from different hospitals got together and decided I had Pbc.after a year I asked about another scan and ultrasound stil showed something so had MRI on Sunday and now awaiting results.i also have high AMA .i would ask for a scan for piece of mind.it could be gall stones as that seems common with us pbcers.

[ROBINLORI in reply to cazz22]

I HAD AN MRI WHICH SHOWED DILATED BILIARY DUCTS. I HAD MY GALL BLADDER OUT 20 YEARS AGO. I DON'T THINK HALF OF THEM KNOW WHAT THEY'RE TALKING ABOUT.

[cazz22]

I sooo agree.i still doubt I have Pbc as my 'symptoms 'seem different from most.was diagnosed feb13 but I guess I'm still in denial.take very little urso when everyone seems to be taking lots.not sure anyone knows anything much about it.look after yourself and I hope the pain subsides soon.x

[ROBINLORI in reply to cazz22]

THX CAZZ22---I APPRECIATE YOUR RESPONSES. YOU FEEL WELL TOO!!!!

[Donna1974]

Hi Robin I get that pain when I eat a lot of rich fatty food (like triple Brie, cured meats, deep fried food) or any gluten. Best thing I have found is to eat light (vege soup) and drink lots if water with fresh lemon juice until it goes - usually about 12 hours. D

[ROBINLORI in reply to Donna1974]

THX SO MUCH DONNA

[Foundry9]

Hi,

I have a constant ache in the liver area, bit like a stitch after running or walking fast. I tell them when I go to check ups but they don't seem concerned. Also, developed a chunk of belly fat in the last year and I'm one of those that can normally eat what I like and never put a pound on! Also hit menopause, so not sure if that's the fat?

I must be honest, I'm not very good at exercising either :-0

[ROBINLORI in reply to Foundry9]

I WENT THROUGH MENOPAUSE MANY YEARS AGO. I HATE EXERCISING BUT I WALK AN HOUR A DAY. I DON'T KNOW WHAT"S GOING ON WITH ME

[sandgroundergirl]

Hi..... As far as I know we dont have any nerves or nerve endings in our liver so we dont get pain IN it... but yes i do know what you mean by an ache around it...Especially when i am relaxed in bed at night... I wonder if its because its so enlarged ?? when i am at work and running around I dont notice it.

and yes certain types of food seem to aggravate the problem.. its trial and error for us all.

[ROBINLORI in reply to sandgroundergirl]

YOU ARE ABSOLUTELY RIGHT--IT MOST CERTAINLY IS TRIAL AND ERROR.

[lkraft]

Yes i do.