Hello and positive thinking to all my sisters and brothers with PBC,
I am 59 years old. I have been on Soc.Sec. Disability since 11/12. I am losing my insurance (COBRA) in 1/14 after being led to believe I could get an 11 month extension.
Social Security is telling me I have to wait 25 months from 11/12 to get medicare. I see that kidney transplant patients can get it sooner. I called my SSD caseworker asking if I can get it sooner since I am a liver transplant patient with "End Stage" pbc. No return call yet.
Does anyone know about this? I have my 3 month appointments at Mayo-AZ next week and have added an appointment with the insurance person to talk about Obama Care and Medicare. What a hassle! I don't want to lose Mayo. (remember,think positive!)
Thanks and good luck to you all, Cindi