As Questran is off limits for the time bein... - PBC Foundation

PBC Foundation

9,391 members8,002 posts

As Questran is off limits for the time being, I spoke to my hepatologist who suggest I can substitute Questran Light, colestipol or

Pat_H profile image
2 Replies

general cholestymamine. I can't guarantee that the spellings are correct! I know what Questran Light is like, has anybody used either of the other two? If so, what comments do you have on taking them?

Written by
Pat_H profile image
Pat_H
To view profiles and participate in discussions please or .
Read more about...
2 Replies

Hiya Pat.

I've not heard of anything other than Questran and then thought perhaps this colestipol was the same but different branded?

On looking it up, the brand name is apparently Colestid. I put 'colestipol uk patient leaflet' into the Google and then scrolled down to PDF view the patient leaflet on the medicine.org.uk website. That would only be useful if you haven't already got the colestipol of course.

The one thing that I know would be a bug-bear is the fact it contains aspartame an artificial sweetener. I think Questran, one of them also contains artificial sweetener (as I know a lot of medicines can do). I've personally not to my knowledge taken anything with artificial sweetener in since PBC diagnose in 2010 and prior to that not regularly as I just thought it odd. I like yogurt but give me the original version with a bit of sugar in any day.

At the end of the day though sometimes feeling we need something outweighs what we would normally do and some are worth a try. I know myself I still itch at night, comes and goes (last night pretty good) but if someone was to tell me tomorrow that if I was to eat a bit of horse manure each day it would eradicate the itch I'd certainly give it ago!

petula profile image
petula

both the same, if you look at sachet you will see.

You may also like...

Hi I am new to this.Wondering if anyone can advise me on Drs. who treat GAVE. for my husband.

He has GAVE (watermelon stomach). He is having transfusions every 2-3 months now, used to be 6...

Finally I have my hospital appointment.

October. I'm not sure what is going to happen or what they will say but I will keep you posted.

Insight or advice needed

that I have stage 3 fibrosis?! Any insight or advice would be much appreciated. I know what...

Sorry to hear your news

ago you were diagnosed? and what your numbers were? Stay strong in my thoughts and prayers. You got

Could someone explain what some of the terms mean regarding the blood tests etc?

levels of what could they mean? What is good and what is bad? Also I have no idea what 'stage' I am...