I was diagnosed in 2009 after severe itching for just under a year, and numerous other symptoms-fatigue, unexplained bruising etc.
I have twice reacted badly to itch remedies and my lft's have frequently been discribed as "significantly raised" the most recent bloods saw both ALT and AST in the two hundreds (that is a fair bit lower than some of my bloods!)
I was seen at clinic yesterday and told that I have "quite advanced Pbc" with obvious cirrhosis. urso has been doubled and am to have 6 monthly scans and regular blood work. i feel a bit shell shocked as at 38 I had thought it wouldnt be until a little later that I would need to discuss transplant issues. Am usually very upbeat about this PBC lark, but news hasnt quite sunk in. Anyone else in advanced stage, what will that mean, what am i to expect? After some frank facts please.